Abstract
Abstract 15394: Caregivers’ Growing Contributions to Heart Failure Self-Care: An Updated Systematic Review
Circulation (New York, N.Y.), Vol.148(Suppl_1)
11/07/2023
DOI: 10.1161/circ.148.suppl_1.15394
Abstract
Abstract only Introduction: In 2015, a seminal systematic review captured the body of literature surrounding the contributions of family caregivers to heart failure (HF) self-care. Since then, the body of HF caregiving research has expanded, necessitating an updated systematic review to inform research, practice, and policy. Goals: To provide an updated systematic review of the empiric literature on informal, unpaid caregivers contributions to HF patients’ self-care. Research Questions: 1) What specific activities do caregivers of people with HF take part in related to HF self-care?; 2) Have these caregiving activities changed over time?; 3) What are the gaps in the science? Methods: The review followed PRISMA guidelines; the protocol was pre-registered in PROSPERO. Comprehensive database search strategies were developed (PubMed, CINAHL, Embase, and Cochrane CENTRAL). The team independently screened and abstracted data; quality was assessed using CASP checklists. Meta-synthesis techniques using critical realist approaches were used to interpret activities, then relationships were analyzed. During data synthesis, activities were benchmarked against the Theory of Self-care in Chronic Illness (TSCI). Results: In total, 2154 research reports were identified, 64 of which were eligible for inclusion (2013-2022). Caregiver contributions to HF self-care activities occurred in TCSI domains of self-care maintenance (91%), monitoring (54%), and management (46%). Activities performed directly on or to the patient were reported more frequently than those performed for the patient. Frequently reported activities like transportation and activity of daily living are not included by the TCSI. Gaps due to ambiguous activity descriptions, inadequate caregiving time quantification, and underrepresented monitoring, supportive, and communication activities were elucidated. Conclusions: Findings support updating the TSCI to include activities antecedent to HF self-care. Identified gaps highlight the need to define specific caregiving activities, determine caregiver task difficulty and burden, and identify caregiver self-care strategy and education needs. The critical need to expose the hidden work of caregiving is essential to inform policy and practice.
Details
- Title: Subtitle
- Abstract 15394: Caregivers’ Growing Contributions to Heart Failure Self-Care: An Updated Systematic Review
- Creators
- Chelsea Howland - University of IowaHarleah G Buck - University of IowaMichael A Stawnychy - University of PennsylvaniaHeba Aldossary - Prince Sultan UniversityYamnia I Cortes - University of North Carolina at Chapel HillJennifer Deberg - University of IowaAngela Durante - Univ of East Piedmont, Novara, ItalyLucinda J Graven - Florida State UniversityElliane Irani - Case Western Reserve UniversitySaida Jaboob - University of IowaAngela Massouh - American University of BeirutNatany Da Costa Ferreira Ob - University of IowaMartha Abshire Saylor - Johns Hopkins UniversityRachel K Wion - Indiana University – Purdue University IndianapolisJulie T Bidwell - Q.D. Research
- Resource Type
- Abstract
- Publication Details
- Circulation (New York, N.Y.), Vol.148(Suppl_1)
- DOI
- 10.1161/circ.148.suppl_1.15394
- ISSN
- 0009-7322
- eISSN
- 1524-4539
- Language
- English
- Date published
- 11/07/2023
- Academic Unit
- Nursing; Center for Social Science Innovation; Hardin Library; University College Courses
- Record Identifier
- 9984539526502771
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