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THE ROOM WHERE IT HAPPENS: ENGAGING EQUITABLY TO OPTIMIZE CANCER SURVIVORSHIP CARE
Abstract   Open access   Peer reviewed

THE ROOM WHERE IT HAPPENS: ENGAGING EQUITABLY TO OPTIMIZE CANCER SURVIVORSHIP CARE

Aaron Seaman and Nitin Pagedar
Innovation in aging, Vol.6(Supplement_1), pp.236-236
12/20/2022
DOI: 10.1093/geroni/igac059.936
url
https://doi.org/10.1093/geroni/igac059.936View
Published (Version of record) Open Access

Abstract

Abstract Cancer survivorship care programs, services, and research would benefit from including people living with a cancer history who have ceased their survivorship care in their engagement efforts. Our prior research with head and neck cancer survivors has shown that a considerable number of patients discontinue their post-treatment survivorship care despite still having care needs. Those patients who continue their care are also the ones most often engaged in research and community partnership; as the ones who are “in the room where it happens,” they consequently have the most influential voices in shaping survivorship care. In this paper, we underscore the necessity of including those who discontinue survivorship care in research and community engagement efforts. We use our work with head and neck cancer survivors as a model for strategizing ways to inclusively and respectfully do so.

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