Abstract
"We're All We Got Is Each Other": Mixed-methods Analysis Of Patient-caregiver Dyadic Management Of Heart Failure
Journal of cardiac failure, Vol.29(4), pp.559-559
04/2023
DOI: 10.1016/j.cardfail.2022.10.033
Abstract
Individuals living in the community with heart failure (HF) often require informal caregiving assistance for optimal self-care maintenance. The influence of caregiver burden and resilience on dyadic congruence is not well understood.
To compare how dyadic congruence is influenced by level of burden and resilience expressed by caregivers of patients with HF.
A mixed-methods, cross-sectional study design was used. We purposively sampled and recruited patient-caregiver dyads who were within six months of a HF-related hospitalization, encompassed a range of caregiving experiences (including spousal and non-spousal care dyads), and/or had unique caregiving needs. Semi-structured, in-depth interviews were conducted, whereby topics included caregivers’ roles, the value of their role, met and unmet needs, challenges managing HF, and suggestions for enhancing support for HF dyads. We used the HF Care Dyadic Typology as an organizing framework; Type I dyads are patient-oriented, Type II are caregiver-oriented, Type III are collaborative and Type IV are incongruent. In addition, we collected characteristics of dyads, and caregiver-rated measures of caregiver burden (Zarit Burden Interview) and resilience (Brief Resilience Scale). Caregiver burden was characterized as ‘high’ (score ≥ 9) or ‘low’ (score < 9). For resilience, dyads were considered ‘high’ (score > 3.6) or ‘low’ (score ≤ 3.6). We used a qualitative descriptive approach and joint displays to compare dyadic experience by dyad type and 1) level of burden and 2) resilience.
Twelve dyads (n=24 participants) were classified as Type II/caregiver-oriented (n=7) and Type III/collaborative (n=5) dyads. Among Type II dyads, the average burden reported by caregivers was 19.4± 13.9 and resilience was 3.2 ± 1. For Type III dyads, average caregiver-reported burden was 3.8± 4.3 and resilience 4.1±1.4, respectively. Two key themes were derived from these concepts of interest: 1) caregivers’ tendency to take the lead, and 2) the usefulness of cognitive reframing as a resilience strategy. Data integration elucidated that theme 1 was more common among Type II dyads and those with higher burden, and theme 2 was more common among Type III dyads and those with higher resilience in caregivers
Findings highlight important variances in the influence of stress, resilience, and other relationship factors on dyads’ congruence and ability to manage HF in the community. Future inquiry should focus tailored intervention development to bolster the role of informal caregivers’ quality of life, so they are able to better support patients throughout their trajectory.
Details
- Title: Subtitle
- "We're All We Got Is Each Other": Mixed-methods Analysis Of Patient-caregiver Dyadic Management Of Heart Failure
- Creators
- Katie Nelson - Johns Hopkins UniversityMartha Abshire Saylor - Johns Hopkins UniversityHarleah Buck - University of IowaPatricia Davidson - University of WollongongLyndsay DeGroot - Baltimore, MDMarlena Fisher - Johns Hopkins UniversityAnnabel Anderson - MedStar Georgetown University HospitalNoelle Pavlovic - Johns Hopkins UniversityNisha Gilotra - Johns Hopkins University School of MedicineSarah Szanton - Johns Hopkins University
- Resource Type
- Abstract
- Publication Details
- Journal of cardiac failure, Vol.29(4), pp.559-559
- Publisher
- Elsevier Inc
- DOI
- 10.1016/j.cardfail.2022.10.033
- ISSN
- 1071-9164
- eISSN
- 1532-8414
- Language
- English
- Date published
- 04/2023
- Academic Unit
- Nursing
- Record Identifier
- 9984387010902771
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