Book chapter
A pilot study to evaluate cross-sectional and longitudinal supplemental data collection on medical and nonmedical costs of muscular dystrophy
SAGE Research Methods Cases: Medicine and Health, SAGE Publications Ltd
2020
DOI: 10.4135/9781529742671
Abstract
This case study describes the design and implementation of a small-scale, or pilot, study for collecting cross-sectional and longitudinal supplemental data on medical and nonmedical costs associated with selected muscular dystrophies. We recruited individuals with a confirmed diagnosis of Duchenne and Becker or myotonic muscular dystrophies identified by the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. We later analyzed our pilot study approach for the purpose of identifying successful components for future large-scale data collection. Readers are expected to learn about the challenges of designing and implementing a pilot study. Our evaluation included recruitment success, cross-sectional versus longitudinal data collection, and response patterns.
Includes bibliographical references and index.
Details
- Title: Subtitle
- A pilot study to evaluate cross-sectional and longitudinal supplemental data collection on medical and nonmedical costs of muscular dystrophy
- Creators
- Kristin M ConwayTahereh NeyazPaul A Romitti
- Resource Type
- Book chapter
- Series
- SAGE Research Methods Cases: Medicine and Health
- DOI
- 10.4135/9781529742671
- ISBN
- 9781529742671; 1529742676
- eISBN
- 9781529742671
- Publisher
- SAGE Publications Ltd; London
- Language
- English
- Date published
- 2020
- Academic Unit
- Epidemiology; Biostatistics
- Record Identifier
- 9984221760302771
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