Journal article
A Conceptual Model of Family Surrogate End-of-Life Decision-Making Process in the Nursing Home Setting: Goals of Care as Guiding Stars
Journal of Social Work in End-of-Life & Palliative Care, Vol.10(1), pp.59-79
01/02/2014
DOI: 10.1080/15524256.2013.877863
PMID: 24628142
Abstract
An increasing proportion of dying is occurring in America's nursing homes (NH). Family members are involved in (and affected by) medical decision-making on behalf of NH residents approaching the end of life, especially when the resident is cognitively impaired. This article proposes an empirically derived conceptual model of the key factors NH family surrogate decision-makers consider when establishing or changing goals of care and the iterative process as applied to the NH setting. This model also establishes the importance of family social role expectations toward their loved one as well as the concept, "stance toward dying," as key in establishing or changing the main goal of care. NH staff and physicians can use the model as a framework for providing information and support to family members. Research is needed to better understand how to prepare staff and settings to support family surrogate decision-makers, in particular around setting goals of care. The model can be generalized beyond nursing homes.
Details
- Title: Subtitle
- A Conceptual Model of Family Surrogate End-of-Life Decision-Making Process in the Nursing Home Setting: Goals of Care as Guiding Stars
- Creators
- Mercedes Bern-Klug - School of Social Work , University of Iowa
- Resource Type
- Journal article
- Publication Details
- Journal of Social Work in End-of-Life & Palliative Care, Vol.10(1), pp.59-79
- DOI
- 10.1080/15524256.2013.877863
- PMID
- 24628142
- NLM abbreviation
- J Soc Work End Life Palliat Care
- ISSN
- 1552-4256
- eISSN
- 1552-4264
- Publisher
- Taylor & Francis Group
- Language
- English
- Date published
- 01/02/2014
- Academic Unit
- International Programs; School of Social Work
- Record Identifier
- 9983983671002771
Metrics
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