Journal article
A Multimethod Assessment of Psychosocial Functioning and Late Effects in Survivors of Childhood Cancer and Hematopoietic Cell Transplant
Journal of pediatric hematology/oncology, Vol.34(1), pp.22-28
01/01/2012
DOI: 10.1097/MPH.0b013e3182281f8e
PMID: 22082747
Abstract
Previous research in childhood cancer and hematopoietic cell transplant (HCT) survivorship has relied on the use of standardized questionnaires that assess symptoms of psychological functioning but do not sufficiently capture the cancer survivorship experience. Study aims are to quantitatively and qualitatively assess the psychosocial functioning of pediatric cancer and HCT survivors seen in a multidisciplinary survivorship clinic, determine survivorship concerns, and assess potential demographic and medical correlates of psychosocial outcomes. Data were collected using a retrospective chart review of a parent-report questionnaire of the child's psychological functioning, responses to a semistructured interview that qualitatively assessed adjustment to life after treatment, and documented medical late effects. Results indicated the majority of survivors had healthy psychological adjustment based upon a parent-report questionnaire. However, nearly 72% of survivors reported 1 or more survivorship concerns during the interview, with the primary concerns being current and future health or physical functioning, including the possibility of cancer recurrence. A content analysis of the interview responses indicated HCT survivors had more school or cognitive functioning concerns compared with survivors who did not have an HCT. Further research should use survivorship-specific measures to better identify survivors at risk and determine the impact of late effects on their quality of life.
Details
- Title: Subtitle
- A Multimethod Assessment of Psychosocial Functioning and Late Effects in Survivors of Childhood Cancer and Hematopoietic Cell Transplant
- Creators
- Kristin Bingen - Medical College of WisconsinRose Lucey Schroedl - Marquette UniversityLynnette AndersonDebra Schmidt - Childrens Hosp Wisconsin, MACC Fund Ctr Canc & Blood Disorders, Milwaukee, WI 53201 USAJennifer Hoag - Childrens Hosp Wisconsin, MACC Fund Ctr Canc & Blood Disorders, Milwaukee, WI 53201 USAHeather ChristiansenMary Jo Kupst
- Resource Type
- Journal article
- Publication Details
- Journal of pediatric hematology/oncology, Vol.34(1), pp.22-28
- Publisher
- Lippincott Williams & Wilkins
- DOI
- 10.1097/MPH.0b013e3182281f8e
- PMID
- 22082747
- ISSN
- 1077-4114
- eISSN
- 1536-3678
- Number of pages
- 7
- Grant note
- Midwest Athletes Against Childhood Cancer (MACC) Fund Next Steps Clinic Team
- Language
- English
- Date published
- 01/01/2012
- Academic Unit
- Pediatric Psychology; Stead Family Department of Pediatrics
- Record Identifier
- 9984702826202771
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