Journal article
A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance
Cancer cell, Vol.38(6), pp.761-766
12/14/2020
DOI: 10.1016/j.ccell.2020.10.022
PMCID: PMC7598547
PMID: 33176160
Abstract
When the COVID-19 pandemic began, formal frameworks to collect data about affected patients were lacking. The COVID-19 and Cancer Consortium (CCC19) was formed to collect granular data on patients with cancer and COVID-19 at scale and as rapidly as possible. CCC19 has grown from five initial institutions to 125 institutions with >400 collaborators. More than 5,000 cases with complete baseline data have been accrued. Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments.
When the COVID-19 pandemic began, formal frameworks to collect data about affected patients were lacking. The COVID-19 and Cancer Consortium (CCC19) was formed to collect granular data on patients with cancer and COVID-19 at scale and as rapidly as possible. CCC19 has grown from five initial institutions to 125 institutions with >400 collaborators. More than 5,000 cases with complete baseline data have been accrued. Future directions include increased electronic health record integration for direct data ingestion, expansion to additional domestic and international sites, more intentional patient involvement, and granular analyses of still-unanswered questions related to cancer subtypes and treatments.
Details
- Title: Subtitle
- A Systematic Framework to Rapidly Obtain Data on Patients with Cancer and COVID-19: CCC19 Governance, Protocol, and Quality Assurance
- Creators
- Maheen AbidiDavid M. AboulafiaMelissa K. AccordinoJared D. AcobaManmeet S. AhluwaliaSyed A. AhmadArchana AjmeraSaif I. AlimohamedJessica AltmanAnne H. AngevineZiad BakounyMichael H. BarAditya BardiaJill S. Barnholtz-SloanBriana Barrow McColloughBabar BashirGerald BatistTanios S. Bekaii-SaabStephanie BergEric H. BernickerDivaya BhutaniMehmet A. BilenPoorva BindalRohit BishnoiSibel BlauPamela BohachekGenevieve BolandMark BonnenGabrielle BouchardNathaniel BouganimDaniel W. BowlesFiona J. BusserOmar ButtAngelo CabalWilhelmina D. CabalonaElwyn C. CabebePaolo CaimiJian L. CampianTheresa M. CarducciJames L. ChenAlex ChengDavid D. ChismToni K. Choueiri - Harvard UniversityMelanie J. ClarkJessica M. ClementJean M. ConnorsErin CookCatherine R. CurranAhmad DaherMark E. DaileyElizabeth J. DavisScott J. DawseyJohn F. DeekenSalvatore A. Del PreteGeorge D. DemetriAakash Desai - Case Western Reserve UniversityDeborah B. DoroshowEric B. DurbinPamela C. EganRawad EliasArielle Elkrief - McGill UniversityDestry J. ElmsAmro ElshouryBryan FallerDimitrios Farmakiotis - Brown UniversityLeslie A. FecherLawrence E. FeldmanCristiano FerrarioMark A. FialaDaniel B. FloraBenjamin FrenchChristopher R. FrieseJulie C. FuShirish M. GadgeelJustin GainorMatthew D. GalskyGerald GanttJorge A. GarciaBenjamin A. GartrellMargaret E. Gatti-MaysDavid M. GillErin A. GillaspieAntonio Giordano(Mary) Grace GlaceMichael J. GloverSanjay GoelJerome J. GraberElizabeth A. GriffithsPetros GrivasPunita GroverAnthony P. GulatiShuchi GulatiShilpa GuptaMichael GurleyNavid HafezSusan HalabiThorvardur R. HalfdanarsonBalazs HalmosDaniel J. HausrathJessica E. HawleyCassandra HennessyRoy S. HerbstDawn L. HershmanClaire HoppenotKent F. HoskinsIrma Hoyo-UlloaEmily HsuChih-Yuan HsuClara HwangJessica Yasmine IslamSalma K. JabbourChinmay JaniAlokkumar JhaSachin R. JhawarDouglas B. JohnsonMonika JoshiAnup KasiKaitlin KelleherHagen F. KenneckeAli Raza KhakiHina KhanMahir KhanJordan KharofaGoetz KloeckerJeanna L. KnobleAmit A. KulkarniVaibhav KumarPhilip E. LammersJohn C. LeightonChristopher A. LemmonMark A. LewisAng LiXuanyi LiStephen V. LiuK.M. LoArturo Loaiza-BonillaBarbara B. LoganElizabeth T. LoggersGilberto de Lima LopesJonathan M. LoreePatricia LoRussoClarke A. LowMaryam B. LustbergGary H. LymanRyan C. LynchSubha MadhavanDaruka MahadevanSana Z. MahmoodAbdul-Hai MansoorMichelle MarcumMerry-Jennifer MarkhamSandeep H. MashruTyler MastersBlanche H. MavromatisRana R. McKayChristopher McNairShannon McWeeneyAlvaro G. MenendezHarry MenonRuben A. MesaVasil MicoChaim MillerSanjay MishraRyan S. MonahanAlicia K. MorgansMary F. MulcahyDaniel MundtSarah MushtaqGayathri NagarajSarah NagleElizabeth S. NakasoneJohn M. NakayamaHeather H. NelsonEneida R. NemecekRyan H. NguyenAmanda NizamAnju NohriaPier Vitale NuzzoNitin OhriAdam J. OlszewskiSusie OwenbyCorrie A. PainterJoshua D. PalmerOrestis A. PanagiotouCathleen ParkMary M. PasquinelliJaymin M. PatelKanishka G. PatelPrakash PeddiNathan A. PennellSolange PetersChristine PilarClement PillainayagamMatthew PucAmelie G. RamirezJoerg RathmannDeepak RavindranathanSonya A. ReidDaniel Y. ReubenSanjay G. RevankarKerry L. ReynoldsYoung Soo RhoTerence D. RhodesRobert L. RiceJonathan RiessBrian I. RiniCameron RinkLane R. RosenLori J. RosensteinRachel P. RosovskyBertrand RoutyMarc A. RovitoSamuel M. RubinsteinM. Wasif SaifMary SalazarMiriam Santos DutraLidia SchapiraAndrew L. SchmidtBrett A. SchroederGary K. SchwartzCandice SchwartzMichael T. SchweizerOscar K. SerranoDanielle A. ShaferPankil K. ShahDimpy ShahMansi R. ShahSumit A. ShahChintan ShahGrace ShawJustin A. ShayaYu ShyrDavid A. SloskyMelissa SmitsCarmen C. SolorzanoKaren StaufferKeith E. Stockerl-GoldsteinDaniel G. StoverJamie StrattonCatherine StrattonMitrianna StreckfussSuki SubbiahLisa TachikiEyob TadesseMichael A. ThompsonUmit TopalogluMatthew D. TuckerEliezer M. Van AllenSusan Van LoonKaren Vega-LunaNeeta K. VenepalliAmit VermaPraveen VikasShaveta VinayakDonald C. VinhMichael J. WagnerSarah WallLucy L. WangJeremy L. WarnerFiras H. WehbePaul L. WeinsteinMatthias WeissLisa B. WeissmannTanya M. WildesNicole WilliamsTrisha M. Wise-DraperWilliam A. WoodJulie Tsu-Yu WuElizabeth M. Wulff-BurchfieldZhuoer XieWenxin XuAlbert C. YehIrene S. YuPeter Paul YuRosemary ZacksQamar Ul ZamanHoward ZarenTian ZhangAlice Y. ZhouHuili ZhuRebecca L. ZonLeyre ZubiriCOVID-19 and Cancer Consortium
- Resource Type
- Journal article
- Publication Details
- Cancer cell, Vol.38(6), pp.761-766
- Publisher
- Elsevier Inc
- DOI
- 10.1016/j.ccell.2020.10.022
- PMID
- 33176160
- PMCID
- PMC7598547
- ISSN
- 1535-6108
- eISSN
- 1878-3686
- Grant note
- DOI: 10.13039/100000054, name: National Cancer Institute; DOI: 10.13039/100000048, name: American Cancer Society
- Language
- English
- Date published
- 12/14/2020
- Academic Unit
- Hematology, Oncology, and Blood & Marrow Transplantation; Internal Medicine
- Record Identifier
- 9984359803602771
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