Journal article
A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies
Journal of autism and developmental disorders, Vol.54(6), pp.2307-2321
06/01/2024
DOI: 10.1007/s10803-023-05968-x
PMID: 37022579
Abstract
Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD) children with neurodevelopmental disorders (NDD) and their families has become a focal point for researchers. This systematic review aimed to identify researchers' strategies for recruiting and retaining SCLD families of children with NDD, published between 1993 and 2018. One hundred twenty-six articles were included, and study samples were categorized as "High SCLD" and "Low SCLD". Chi-square tests of independence were used to determine associations between sample composition (i.e., High/Low SCLD sample) and study characteristics reported. Significant associations were found between sample composition and studies that explicitly stated intention to recruit SCLD families, chi(2)(1) = 12.70, p < .001, Phi = 0.38 (moderate); and for studies that reported the following participant characteristics: language, chi(2)(1) = 29.58, p < .001, Phi = 0.48 (moderate-to-large); and race/ethnicity + SES + language, chi(2)(1) = 19.26, p <. 001, Phi = 0.39 (moderate). However, associations were not found between recruitment and retention approaches and whether studies included High SCLD or Low SCLD samples. Further study of NDD researchers' recruitment and retention approaches that successfully include SCLD families is needed.
Details
- Title: Subtitle
- A Systematic Review of Recruiting and Retaining Sociodemographically Diverse Families in Neurodevelopmental Research Studies
- Creators
- Sarah S. Mire - University of HoustonDieu M. Truong - University of HoustonGeorgina J. Sakyi - University of HoustonMycah L. Ayala-Brittain - University of HoustonJelisa D. Boykin - University of HoustonChristian M. Stewart - University of HoustonFre'Dasia Daniels - University of HoustonBrenda Duran - University of HoustonScarlett Gardner - University of HoustonAlexandra M. Barth - University of HoustonGeorgette Richardson - University of HoustonShannon L. McKee - University of Houston
- Resource Type
- Journal article
- Publication Details
- Journal of autism and developmental disorders, Vol.54(6), pp.2307-2321
- Publisher
- Springer Nature
- DOI
- 10.1007/s10803-023-05968-x
- PMID
- 37022579
- ISSN
- 0162-3257
- eISSN
- 1573-3432
- Number of pages
- 15
- Language
- English
- Date published
- 06/01/2024
- Academic Unit
- Pediatric Psychology; Stead Family Department of Pediatrics
- Record Identifier
- 9984701645402771
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