Journal article
A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment
Journal of the Korean Association of Oral and Maxillofacial Surgeons, Vol.43(4), pp.247-255
08/2017
DOI: 10.5125/jkaoms.2017.43.4.247
PMCID: PMC5583199
PMID: 28875139
Abstract
The aim of this study was to compare the quality of life (QoL) of parents/caregivers of children with cleft lip and/or palate before and after surgical repair of an orofacial cleft.
Families of subjects who required either primary or secondary orofacial cleft repair who satisfied the inclusion criteria were recruited. A preoperative and postoperative health-related QoL questionnaire, the 'Impact on Family Scale' (IOFS), was applied in order to detect the subjectively perceived QoL in the affected family before and after surgical intervention. The mean pre- and postoperative total scores were compared using paired t-test. Pre- and postoperative mean scores were also compared across the 5 domains of the IOFS.
The proportion of families whose QoL was affected before surgery was 95.7%. The domains with the greatest impact preoperatively were the financial domain and social domains. Families having children with bilateral cleft lip showed QoL effects mostly in the social domain and 'impact on sibling' domain. Postoperatively, the mean total QoL score was significantly lower than the mean preoperative QoL score, indicating significant improvement in QoL (
<0.001). The mean postoperative QoL score was also significantly lower than the mean preoperative QoL score in all domains. Only 3.2% of the families reported affectation of their QoL after surgery. The domains of mastery (61.3%) with a mean of 7.4±1.8 and finance (45.1%) with a mean score of 7.2±1.6 were those showing the greatest postoperative impact. The proportion of families whose QoL was affected by orofacial cleft was markedly different after treatment (95.7% preoperative and 3.2% postoperative).
Caring for children with orofacial clefts significantly reduces the QoL of parents/caregivers in all domains. However, surgical intervention significantly improves the QoL of the parents/caregivers of these children.
Details
- Title: Subtitle
- A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment
- Creators
- Christian I Emeka - Department of Oral/Maxillofacial Surgery, Lagos University Teaching Hospital, Lagos, NigeriaWasiu L Adeyemo - Department of Oral/Maxillofacial Surgery, College of Medicine, University of Lagos, Lagos, NigeriaAkinola L Ladeinde - Department of Oral/Maxillofacial Surgery, College of Medicine, University of Lagos, Lagos, NigeriaAzeez Butali - Department of Oral Pathology, Radiology and Medicine, College of Dentistry, University of Iowa, Iowa City, IA, USA
- Resource Type
- Journal article
- Publication Details
- Journal of the Korean Association of Oral and Maxillofacial Surgeons, Vol.43(4), pp.247-255
- DOI
- 10.5125/jkaoms.2017.43.4.247
- PMID
- 28875139
- PMCID
- PMC5583199
- NLM abbreviation
- J Korean Assoc Oral Maxillofac Surg
- ISSN
- 2234-7550
- eISSN
- 2234-5930
- Publisher
- Korea (South)
- Language
- English
- Date published
- 08/2017
- Academic Unit
- Oral Pathology, Radiology and Medicine; Stead Family Department of Pediatrics; Craniofacial Anomalies Research Center; Dental Research
- Record Identifier
- 9984065719202771
Metrics
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