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A novel mutation in ACTG1 causing Baraitser-Winter syndrome with extremely variable expressivity in three generations
Journal article   Open access   Peer reviewed

A novel mutation in ACTG1 causing Baraitser-Winter syndrome with extremely variable expressivity in three generations

Andrew Kemerley, Christina Sloan, Wanda Pfeifer, Richard Smith and Arlene Drack
Ophthalmic Genetics, Vol.38(2), pp.152-156
03/04/2017
DOI: 10.3109/13816810.2016.1164196
PMCID: PMC5722223
PMID: 27096712
url
http://doi.org/10.3109/13816810.2016.1164196View
Open Access

Abstract

Baraitser-Winter syndrome (cerebrofrontofacial syndrome, type 3) is a rare developmental disorder typified by hypertelorism, ptosis, high-arched eyebrows, ocular coloboma, and brain malformations. Other common manifestations include hearing loss, short stature, seizures, intellectual impairment, muscle dysfunction, and abnormalities of the kidney and urinary system. This syndrome is caused by missense mutations in the genes ACTB or ACTG1, both of which encode for cytoplasmic actin proteins crucial for proper development of many organs in the human body. There are no reports of familial transmission; all reported cases have been new mutations. However, different mutations in ACTG1 have been reported to cause isolated non-syndromic hearing loss, with many reported cases of autosomal dominant (AD) inheritance. We have identified a three-generation pedigree segregating a novel mutation in the ACTG1 gene that causes Baraitser-Winter Syndrome with extremely variable expressivity, leading to an initial diagnosis of isolated AD hearing loss in two members. Subtle optic nerve signs not previously reported in this syndrome are also documented in one patient.
Baraitser-Winter hearing loss coloboma ACTG1

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