Journal article
A patient-centered gout information value chain: a scoping review
Patient education and counseling, Vol.105(1), pp.30-43
01/2022
DOI: 10.1016/j.pec.2021.06.007
PMCID: PMC8651807
PMID: 34120817
Abstract
•Only a small part of the included records focused on the health information needed for gout patients.•Medical treatment was the main topic of studies that focused on gout patient information.•There is a persistent dearth of relevant information provided to gout patients for adequate disease management.•Multiple findings highlight the interrelated nature of the various information types necessary to successfully manage gout.•Value chain analysis can be used to identify information required by gout patients to effectively engage in self-care management.
To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis.
Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13).
The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education.
Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them.
This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.
Details
- Title: Subtitle
- A patient-centered gout information value chain: a scoping review
- Creators
- Maranda J. Russell - University of KentuckySujin Kim - University of KentuckyAleksander Lenert - Roy J. and Lucille A. Carver College of Medicine
- Resource Type
- Journal article
- Publication Details
- Patient education and counseling, Vol.105(1), pp.30-43
- DOI
- 10.1016/j.pec.2021.06.007
- PMID
- 34120817
- PMCID
- PMC8651807
- NLM abbreviation
- Patient Educ Couns
- ISSN
- 0738-3991
- eISSN
- 1873-5134
- Publisher
- Elsevier B.V
- Grant note
- DOI: 10.13039/100006108, name: National Center for Advancing Translational Sciences, award: UL1TR001998; DOI: 10.13039/100000002, name: National Institutes of Health
- Language
- English
- Date published
- 01/2022
- Academic Unit
- Immunology; Internal Medicine
- Record Identifier
- 9984359878002771
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