A qualitative exploration of goals-of-care discussions with seriously ill patients in Jordan

Alaa Albashayreh; Stephanie Gilbertson-White; Dalal Al Nashash; Omar Shamieh; Ma'an Al-Omari; Patricia Kinser

doi:10.1017/S1478951523000226

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A qualitative exploration of goals-of-care discussions with seriously ill patients in Jordan

Journal article

Open access

Peer reviewed

A qualitative exploration of goals-of-care discussions with seriously ill patients in Jordan

Alaa Albashayreh, Stephanie Gilbertson-White, Dalal Al Nashash, Omar Shamieh, Ma'an Al-Omari and Patricia Kinser

Palliative & supportive care, Vol.22(5), pp.986-993

10/2024

DOI: 10.1017/S1478951523000226

PMID: 36960613

Appears in UI Libraries Support Open Access

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Abstract

This study aims to explore seriously ill patients' experiences during goals-of-care discussions and perspectives of end-of-life (EOL) decision-making in the Middle Eastern country of Jordan. This is a qualitative descriptive study with semi-structured, one-on-one interviews. Settings were 2 large hospitals in Jordan. Patients were a purposeful sample of 14 Arabic-speaking adults who were seriously ill and hospitalized with palliative care needs. Conventional content analysis identified 4 main themes: perceived suffering during serious illness, attitudes toward discussing EOL decision-making, goals of care and preferences for EOL, and actions to enhance EOL decision-making. Disease and treatment burdens and concerns about life, family, and death were sources of suffering during serious illness. What matters most to patients at EOL were alleviating suffering and getting support from family, friends, and care providers. Although patients expressed reluctance and inaction toward EOL decision-making due to uncertainties, lacking awareness, and assumptions of fear, their potential goals of care were to live longer, be with their families, and die with dignity. Jordanians and culturally similar Arabs could benefit from goals-of-care discussions. The proper, culturally sensitive implementation of goals-of-care discussions in Arab populations with similar cultural norms requires raising public awareness and clarifying the legitimacy of goals-of-care discussions, preparing patients and their families for the discussions, and considering individual variations in handling the discussions.

Palliative Care

Decision-making

Qualitative research

Advance care planning

Goals of care

UIOWA OA Agreement

Details

Title: Subtitle: A qualitative exploration of goals-of-care discussions with seriously ill patients in Jordan
Creators: Alaa Albashayreh - College of Nursing, University of Iowa, Iowa City, IA, USA
Stephanie Gilbertson-White - University of Iowa
Dalal Al Nashash - Kuwait Cancer Control Center
Omar Shamieh - University of Jordan
Ma'an Al-Omari - Department of Nursing, King Abdulla University Hospital, Irbid, Jordan
Patricia Kinser - Virginia Commonwealth University
Resource Type: Journal article
Publication Details: Palliative & supportive care, Vol.22(5), pp.986-993
DOI: 10.1017/S1478951523000226
PMID: 36960613
NLM abbreviation: Palliat Support Care
ISSN: 1478-9515
eISSN: 1478-9523
Publisher: Cambridge University Press
Language: English
Electronic publication date: 03/24/2023
Date published: 10/2024
Academic Unit: Nursing; Internal Medicine
Record Identifier: 9984380463202771

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