Journal article
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers
Dementia (London, England), Vol.22(2), pp.328-345
02/2023
DOI: 10.1177/14713012221146253
PMID: 36534394
Abstract
Unpaid caregivers frequently feel underprepared and without adequate training, support, or access to services and resources to care for persons living with dementia. Health and community-based services and providers are critical to support persons living with dementia and their unpaid caregivers. The objective of this research is to understand how unpaid caregivers of persons living with dementia interact with health and community-based services and providers.
We used a qualitative descriptive approach to analyze data from one-on-one semi-structured interviews with unpaid caregivers of persons living with dementia (
= 25). We used framework analysis to organize themes and sub-themes within the systems approach to healthcare delivery.
Participants described a need for additional guidance, information, and support from health and community-based services and providers. This need was described by participants at 4 levels: individual, care team, organization, and political and economic environment. Participants were active in proposing potential solutions to challenges at all 4 levels, including improving provider awareness and training in dementia, opportunities to provide resources and referrals upon dementia diagnosis, a central clearinghouse for information and resources for persons living with dementia and caregivers, and opportunities to close service gaps.
Findings of this study highlight the need for increased involvement of caregivers of persons living with dementia as community stakeholders for improving care and services. Recommendations to promote high quality care and better support unpaid caregivers by developing interventions to address multiple aspects of healthcare delivery are consistent with recent legislation and are important areas of future research.
Details
- Title: Subtitle
- A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers
- Creators
- Daniel Liebzeit - 16102The University of Iowa College of Nursing, Iowa City, IA, USABeth Fields - Department of Kinesiology, 5228University of Wisconsin-Madison School of Education, Madison, WI, USAErin L Robinson - School of Social Work, 14716University of Missouri, Columbia, MO, USASaida Jaboob - 16102The University of Iowa College of Nursing, Iowa City, IA, USASato Ashida - University of Iowa
- Resource Type
- Journal article
- Publication Details
- Dementia (London, England), Vol.22(2), pp.328-345
- DOI
- 10.1177/14713012221146253
- PMID
- 36534394
- NLM abbreviation
- Dementia (London)
- ISSN
- 1471-3012
- eISSN
- 1741-2684
- Grant note
- name: The University of Iowa Aging Mind and Brain Initiative and University of Iowa Center on Aging
- Language
- English
- Electronic publication date
- 12/19/2022
- Date published
- 02/2023
- Academic Unit
- Nursing; Injury Prevention Research Center; Public Policy Center (Archive); Community and Behavioral Health
- Record Identifier
- 9984339459102771
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