Journal article
Academia, advocacy, and industry: a collaborative method for clinical research advancement
American journal of medical genetics. Part A, Vol.164A(7), pp.1619-1621
07/2014
DOI: 10.1002/ajmg.a.36509
PMID: 24700599
Abstract
Professionals who work in academia, advocacy, and industry often carry out mutually exclusive activities related to research and clinical care. However, there are several examples of collaboration among such professionals that ultimately allows for improved scientific and clinical understanding. This commentary recounts our particular experience (a collaboration between geneticists at the Universities of Minnesota and Utah, the 4p- Support Group, and Lineagen, Inc) and reviews other similar projects. We formally propose this collaborative method as a conduit for future clinical research programs. Specifically, we encourage academicians, directors of family/advocacy/support groups, and members of industry to establish partnerships and document their experiences. The medical community as a whole will benefit from such partnerships and, specifically, families will teach us lessons that could never be learned in a laboratory or textbook.
Details
- Title: Subtitle
- Academia, advocacy, and industry: a collaborative method for clinical research advancement
- Creators
- Rena J Vanzo - Lineagen, Inc, Salt Lake City, UtahAmanda LortzAmy R U L CalhounJohn C Carey
- Resource Type
- Journal article
- Publication Details
- American journal of medical genetics. Part A, Vol.164A(7), pp.1619-1621
- DOI
- 10.1002/ajmg.a.36509
- PMID
- 24700599
- ISSN
- 1552-4825
- eISSN
- 1552-4833
- Language
- English
- Date published
- 07/2014
- Academic Unit
- Stead Family Department of Pediatrics; Medical Genetics and Genomics
- Record Identifier
- 9984093310902771
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