Journal article
Adapting the Resilience Framework for Family Caregivers of Hospice Patients With Dementia
American journal of Alzheimer's disease and other dementias, Vol.34(6), pp.399-411
09/01/2019
DOI: 10.1177/1533317519862095
PMCID: PMC7179812
PMID: 31364381
Abstract
Family caregivers face ongoing, formidable stress and burden. Caregivers need sustainable support to maintain resilience. We aim to identify challenges, possible solutions that are resources for resilience, and expected consequences from the perspective of 39 family caregivers of hospice patients with dementia. The resilience framework was used to guide the coding and synthesis of the qualitative data. Identified challenges included difficulties in communication, providing care and decision-making, lack of knowledge, emotional challenges, concern about care facility selection, death with dignity, and lack of public awareness. Resilience resources for caregiving challenges were identified at the individual, community, and societal levels. Anticipated benefits of using these resources included the ability to provide better care and have a better quality of life for both patients and caregivers. The findings of this study can guide the design and implementation of supportive interventions designed for family caregivers of hospice patients with dementia to bolster available resilience resources.
Details
- Title: Subtitle
- Adapting the Resilience Framework for Family Caregivers of Hospice Patients With Dementia
- Creators
- Soojeong Han - University of WashingtonNai-Ching Chi - University of IowaClaire Han - University of WashingtonDebra Parker Oliver - University of MissouriKarla Washington - University of MissouriGeorge Demiris - University of Pennsylvania
- Resource Type
- Journal article
- Publication Details
- American journal of Alzheimer's disease and other dementias, Vol.34(6), pp.399-411
- DOI
- 10.1177/1533317519862095
- PMID
- 31364381
- PMCID
- PMC7179812
- NLM abbreviation
- Am J Alzheimers Dis Other Demen
- ISSN
- 1533-3175
- eISSN
- 1938-2731
- Publisher
- Sage
- Number of pages
- 13
- Grant note
- R01NR012213 / NATIONAL INSTITUTE OF NURSING RESEARCH; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR) R01NR012213 / National Institutes of Health, National Institute of Nursing Research; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
- Language
- English
- Date published
- 09/01/2019
- Academic Unit
- Iowa Neuroscience Institute; Nursing
- Record Identifier
- 9984370751202771
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