All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes

Sandra Daack-Hirsch; Lisa L Shah; Kaitlyn Jones; Brenda Rocha; Megan Doerr; Emily Gabitzsch; Thad Meese

doi:10.1111/hex.12986

Back

All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes

Journal article

Open access

Peer reviewed

All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes

Sandra Daack-Hirsch, Lisa L Shah, Kaitlyn Jones, Brenda Rocha, Megan Doerr, Emily Gabitzsch and Thad Meese

Health expectations : an international journal of public participation in health care and health policy, Vol.23(1), pp.169-181

02/2020

DOI: 10.1111/hex.12986

PMCID: PMC6978869

PMID: 31646744

Files and links (1)

url

https://doi.org/10.1111/hex.12986View

Published (Version of record) Open Access

Abstract

A positive family history of type 2 diabetes (T2D) has been associated with risk awareness and risk-reducing behaviours among the unaffected relatives. Yet, little is known about how people with a positive family history for diabetes develop and manage their personal sense of risk. To characterize two key concepts, salience and vulnerability, within the familial risk perception (FRP) model among unaffected individuals, at increased familial risk for T2D. We conducted a mixed method study. Descriptions of salience and vulnerability were collected through semi-structured interviews. Participant's perception of self-reported risk factors (family history, age, race/ethnicity, medical history, weight and exercise) was measured using the Perceived Risk Factors for T2D Tool and was compared to a clinical evaluation of the same risk factors. We identified two components of salience: (a) concern for developing T2D and (b) risk awareness triggers, and two features of vulnerability: (a) statement of risk and (b) risk assessment devices. Although few participants (26%) were concordant between their perceived and clinical overall T2D risk, concordance for individual risk factors was higher, ranging from 42% (medical history) to 90% (family history). Both familial and non-familial events lead people to contemplate their T2D risk, even among people who have a positive family history. Participants often downplayed their overall risk and underestimated their overall risk compared to a clinical risk assessment of the same self-reported risk factors. Clinicians could leverage key components of the FRP process as way to engage patients in risk reduction strategies earlier.

Adult

Diabetes Mellitus, Type 2 - genetics

Female

Genetic Predisposition to Disease

Health Status

Humans

Interviews as Topic

Male

Medical History Taking

Middle Aged

Risk Assessment

Risk Reduction Behavior

Self Report

Details

Title: Subtitle: All things considered, my risk for diabetes is medium: A risk personalization process of familial risk for type 2 diabetes
Creators: Sandra Daack-Hirsch - University of Iowa
Lisa L Shah - University of Iowa
Kaitlyn Jones - University of Iowa
Brenda Rocha - University of Iowa
Megan Doerr - Cleveland Clinic
Emily Gabitzsch - Cleveland Clinic
Thad Meese - Cleveland Clinic
Resource Type: Journal article
Publication Details: Health expectations : an international journal of public participation in health care and health policy, Vol.23(1), pp.169-181
DOI: 10.1111/hex.12986
PMID: 31646744
PMCID: PMC6978869
NLM abbreviation: Health Expect
ISSN: 1369-6513
eISSN: 1369-7625
Grant note: T32NR009759 / NINR NIH HHS K23 NR012972-01 / NIH/National Institute of Nursing Research 5F31NR014758 / NINR NIH HHS
Language: English
Date published: 02/2020
Academic Unit: Nursing; Fraternal Order of Eagles Diabetes Research Center; Public Policy Center (Archive)
Record Identifier: 9984283711302771

Metrics

59 Record Views

8 Times Cited - Web of Science