Journal article
Assessment of comorbid symptoms in pediatric autonomic dysfunction
Clinical autonomic research, Vol.33(6), pp.843-858
12/2023
DOI: 10.1007/s10286-023-00984-4
PMID: 37733160
Abstract
PURPOSE Pediatric patients with autonomic dysfunction and orthostatic intolerance (OI) often present with co-existing symptoms and signs that might or might not directly relate to the autonomic nervous system. Our objective was to identify validated screening instruments to characterize these comorbidities and their impact on youth functioning. METHODS The Pediatric Assembly of the American Autonomic Society reviewed the current state of practice for identifying symptom comorbidities in youth with OI. The assembly includes physicians, physician-scientists, scientists, advanced practice providers, psychologists, and a statistician with expertise in pediatric disorders of OI. A total of 26 representatives from the various specialties engaged in iterative meetings to: (1) identify and then develop consensus on the symptoms to be assessed, (2) establish committees to review the literature for screening measures by member expertise, and (3) delineate the specific criteria for systematically evaluating the measures and for making measure recommendations by symptom domains. RESULTS We review the measures evaluated and recommend one measure per system/concern so that assessment results from unrelated clinical centers are comparable. We have created a repository to apprise investigators of validated, vetted assessment tools to enhance comparisons across cohorts of youth with autonomic dysfunction and OI. CONCLUSION This effort can facilitate collaboration among clinical settings to advance the science and clinical treatment of these youth. This effort is essential to improving management of these vulnerable patients as well as to comparing research findings from different centers.
Details
- Title: Subtitle
- Assessment of comorbid symptoms in pediatric autonomic dysfunction
- Creators
- Sally E Tarbell - Northwestern UniversityErin L Olufs - University of IowaPhilip R Fischer - Mayo Clinic in FloridaGisela Chelimsky - Children's Hospital of Richmond at VCUMohammed T Numan - The University of Texas Health Science CenterMarvin Medow - New York Medical CollegeHasan AbdallahShelley Ahrens - Mayo Clinic in FloridaJeffrey R BorisIan J Butler - The University of Texas Health Science CenterThomas C Chelimsky - Virginia Commonwealth UniversityCraig ColebyJohn E Fortunato - Northwestern UniversityRaewyn Gavin - Starship Children's HealthJanice Gilden - Rosalind Franklin University of Medicine and ScienceRenato Gonik - Florida CollegeKelsey Klaas - Mayo Clinic in FloridaLauren Marsillio - Northwestern UniversityErin Marriott - University of Wisconsin American Family Children's HospitalLaura A PacePaul Pianosi - University of Minnesota Medical CenterPippa Simpson - Medical College of WisconsinJulian Stewart - New York Medical CollegeNatalie Van Waning - University of Iowa Stead Family Children’s Hospital
- Resource Type
- Journal article
- Publication Details
- Clinical autonomic research, Vol.33(6), pp.843-858
- DOI
- 10.1007/s10286-023-00984-4
- PMID
- 37733160
- eISSN
- 1619-1560
- Language
- English
- Electronic publication date
- 09/21/2023
- Date published
- 12/2023
- Academic Unit
- Psychiatry; Stead Family Department of Pediatrics
- Record Identifier
- 9984466695902771
Metrics
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