BigMouth: development and maintenance of a successful dental data repository

Muhammad F Walji; Heiko Spallek; Krishna Kumar Kookal; Jane Barrow; Britta Magnuson; Tamanna Tiwari; Udochukwu Oyoyo; Michael Brandt; Brian J Howe; Gary C Anderson; Joel M White; Elsbeth Kalenderian

doi:10.1093/jamia/ocac001

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BigMouth: development and maintenance of a successful dental data repository

Journal article

Open access

Peer reviewed

BigMouth: development and maintenance of a successful dental data repository

Muhammad F Walji, Heiko Spallek, Krishna Kumar Kookal, Jane Barrow, Britta Magnuson, Tamanna Tiwari, Udochukwu Oyoyo, Michael Brandt, Brian J Howe, Gary C Anderson, …

Journal of the American Medical Informatics Association : JAMIA, Vol.29(4), pp.701-706

01/23/2022

DOI: 10.1093/jamia/ocac001

PMCID: PMC8922177

PMID: 35066586

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Abstract

Few clinical datasets exist in dentistry to conduct secondary research. Hence, a novel dental data repository called BigMouth was developed, which has grown to include 11 academic institutions contributing Electronic Health Record data on over 4.5 million patients. The primary purpose for BigMouth is to serve as a high-quality resource for rapidly conducting oral health-related research. BigMouth allows for assessing the oral health status of a diverse US patient population; provides rationale and evidence for new oral health care delivery modes; and embraces the specific oral health research education mission. A data governance framework that encouraged data sharing while controlling contributed data was initially developed. This transformed over time into a mature framework, including a fee schedule for data requests and allowing access to researchers from noncontributing institutions. Adoption of BigMouth helps to foster new collaborations between clinical, epidemiological, statistical, and informatics experts and provides an additional venue for professional development.

AcademicSubjects

Case Reports

data governance

dentistry

learning healthcare system

MED00580

Research Patient Data Repositories

SCI01060

SCI01530

Details

Title: Subtitle: BigMouth: development and maintenance of a successful dental data repository
Creators: Muhammad F Walji - The University of Texas Health Science Center at Houston
Heiko Spallek - The University of Sydney
Krishna Kumar Kookal - The University of Texas Health Science Center at Houston
Jane Barrow - The University of Texas Health Science Center at Houston
Britta Magnuson - Tufts University
Tamanna Tiwari - University of Colorado Denver
Udochukwu Oyoyo - Loma Linda University
Michael Brandt - University at Buffalo, State University of New York
Brian J Howe - University of Iowa
Gary C Anderson - University of Minnesota
Joel M White - University of California, San Francisco
Elsbeth Kalenderian - University of Pretoria
Resource Type: Journal article
Publication Details: Journal of the American Medical Informatics Association : JAMIA, Vol.29(4), pp.701-706
DOI: 10.1093/jamia/ocac001
PMID: 35066586
PMCID: PMC8922177
NLM abbreviation: J Am Med Inform Assoc
ISSN: 1067-5027
eISSN: 1527-974X
Publisher: Oxford University Press
Grant note: G08LM010075 / ;
Language: English
Date published: 01/23/2022
Academic Unit: Dental Clinic Administration; Craniofacial Anomalies Research Center; Family Dentistry
Record Identifier: 9984367644102771

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