Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

L Casey White; J Kiely Law; Amy M Daniels; Jaimie Toroney; Brianna Vernoia; Sabrina Xiao; Pamela Feliciano; Wendy K Chung

doi:10.1007/s10803-020-04816-6

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Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

Journal article

Open access

Peer reviewed

Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

L Casey White, J Kiely Law, Amy M Daniels, Jaimie Toroney, Brianna Vernoia, Sabrina Xiao, Pamela Feliciano and Wendy K Chung

Journal of autism and developmental disorders, Vol.51(10), pp.3766-3773

01/02/2021

DOI: 10.1007/s10803-020-04816-6

PMCID: PMC7775834

PMID: 33387233

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Abstract

The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.

Stress

COVID-19

Services

Telehealth

Autism spectrum disorder

Details

Title: Subtitle: Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort
Creators: L Casey White - Simons Foundation, 160 5th Avenue, New York, NY, 10010, USA
J Kiely Law - Maryland Center for Developmental Disabilities, Kennedy Krieger Institute, Baltimore, MD, 21211, USA
Amy M Daniels - Simons Foundation, 160 5th Avenue, New York, NY, 10010, USA
Jaimie Toroney - Maryland Center for Developmental Disabilities, Kennedy Krieger Institute, Baltimore, MD, 21211, USA
Brianna Vernoia - Simons Foundation, 160 5th Avenue, New York, NY, 10010, USA
Sabrina Xiao - Simons Foundation, 160 5th Avenue, New York, NY, 10010, USA
Pamela Feliciano - Simons Foundation, 160 5th Avenue, New York, NY, 10010, USA
Wendy K Chung - Department of Pediatrics and Medicine, Columbia University Irving Medical Center, New York, NY, 10032, USA. wkc15@cumc.columbia.edu
Contributors: Jacob J Michaelson (Contributor) - University of Iowa, Roy J. Carver Department of Biomedical Engineering
Spark Consortium (Author)
Resource Type: Journal article
Publication Details: Journal of autism and developmental disorders, Vol.51(10), pp.3766-3773
DOI: 10.1007/s10803-020-04816-6
PMID: 33387233
PMCID: PMC7775834
NLM abbreviation: J Autism Dev Disord
ISSN: 0162-3257
eISSN: 1573-3432
Publisher: United States
Language: English
Date published: 01/02/2021
Academic Unit: Roy J. Carver Department of Biomedical Engineering; Communication Sciences and Disorders; Psychiatry; Iowa Neuroscience Institute
Record Identifier: 9984070129902771

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