"Cancer Sucks," and Other Ponderings by Adolescent and Young Adult Cancer Survivors

Brad Zebrack; Erin E Kent; Theresa H. M Keegan; Ikuko Kato; Ashley Wilder Smith; Aya Hope Study Collaborative Group

doi:10.1080/07347332.2013.855959

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"Cancer Sucks," and Other Ponderings by Adolescent and Young Adult Cancer Survivors

Journal article

Peer reviewed

"Cancer Sucks," and Other Ponderings by Adolescent and Young Adult Cancer Survivors

Brad Zebrack, Erin E Kent, Theresa H. M Keegan, Ikuko Kato, Ashley Wilder Smith and Aya Hope Study Collaborative Group

Journal of psychosocial oncology, Vol.32(1), pp.1-15

01/01/2014

DOI: 10.1080/07347332.2013.855959

PMCID: PMC3902666

PMID: 24428248

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Abstract

As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs' perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs' cancer treatment experiences and will inform improvements to oncology care for this population.

adolescent

medical care

psychosocial

qualitative research

young adult

Details

Title: Subtitle: "Cancer Sucks," and Other Ponderings by Adolescent and Young Adult Cancer Survivors
Creators: Brad Zebrack - University of Michigan School of Social Work
Erin E Kent - Office of Cancer Survivorship, National Cancer Institute, National Institutes of Health
Theresa H. M Keegan - Cancer Prevention Institute of California, Fremont, CA and School of Medicine, Stanford University
Ikuko Kato - Departments of Oncology and Pathology, Wayne State University School of Medicine
Ashley Wilder Smith - Outcomes Research Branch, National Cancer Institute
Aya Hope Study Collaborative Group
Contributors: Charles F Lynch (Contributor) - University of Iowa, Epidemiology
Resource Type: Journal article
Publication Details: Journal of psychosocial oncology, Vol.32(1), pp.1-15
DOI: 10.1080/07347332.2013.855959
PMID: 24428248
PMCID: PMC3902666
NLM abbreviation: J Psychosoc Oncol
ISSN: 0734-7332
eISSN: 1540-7586
Publisher: Taylor & Francis Group
Language: English
Date published: 01/01/2014
Academic Unit: Epidemiology
Record Identifier: 9984214683102771

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