Caregiver Contribution to Heart Failure Self-Care (CACHS)

Karen Harkness; Harleah G. Buck; Heather Arthur; Sandra Carroll; Tammy Cosman; Michael McGillion; Sharon Kaasalainen; Jennifer Kryworuchko; Sheila O'Keefe-McCarthy; Diana Sherifali; Patricia H. Strachan

doi:10.1002/nop2.35

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Caregiver Contribution to Heart Failure Self-Care (CACHS)

Journal article

Open access

Peer reviewed

Caregiver Contribution to Heart Failure Self-Care (CACHS)

Karen Harkness, Harleah G. Buck, Heather Arthur, Sandra Carroll, Tammy Cosman, Michael McGillion, Sharon Kaasalainen, Jennifer Kryworuchko, Sheila O'Keefe-McCarthy, Diana Sherifali, …

Nursing open, Vol.3(1), pp.51-60

01/2016

DOI: 10.1002/nop2.35

PMCID: PMC5047331

PMID: 27708815

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Abstract

Aim While caregivers (CGs) make an important contribution to the self-care of heart failure (HF) patients, there are no reliable and valid tools for measuring such contributions. Current interventions that strive to optimize patient outcomes through self-care strategies neglect to account for CG contributions, a potential confounder on outcomes. The aim of the study was to develop an instrument that measures CG contributions to HF patients' self-care. Design The study design follows an established process for instrument development. Methods A systematic literature review and semi-structured interviews of CGs were conducted to identify measureable CG activities. Items were derived from thematic analysis of CG narratives. A content validity index was computed for each item (I-CVI). Items with an I-CVI of >0.70 were retained. Items with an I-CVI of 0.50-0.70 were revised for clarification and items with an I-CVI <0.5 were discarded, except in instances where fulsome theoretical or empirical evidence supported their retention. Results 14 CGs completed interviews and 10 CGs with 4 expert nurses completed I-CVI testing. Major interview themes included arranging appointments, medication adherence, monitoring, coordinating care, encouraging independence and taking action. A total of 36 items were constructed and underwent I-CVI testing. Following I-CVI testing, 27 items were retained, seven items were retained after revision based on CG feedback and two items were removed. This newly developed 34-item questionnaire represents current literature, CGs' experiences, excellent I-CVI scores and ready for further psychometric testing.

Nursing

Life Sciences & Biomedicine

Science & Technology

Details

Title: Subtitle: Caregiver Contribution to Heart Failure Self-Care (CACHS)
Creators: Karen Harkness - Hamilton Health Sciences
Harleah G. Buck - Pennsylvania State University
Heather Arthur - McMaster University
Sandra Carroll - Population Health Research Institute
Tammy Cosman - Hamilton Health Sciences
Michael McGillion - Population Health Research Institute
Sharon Kaasalainen - McMaster University
Jennifer Kryworuchko - University of Saskatchewan
Sheila O'Keefe-McCarthy
Diana Sherifali - Hamilton Health Sciences
Patricia H. Strachan - McMaster University
Resource Type: Journal article
Publication Details: Nursing open, Vol.3(1), pp.51-60
DOI: 10.1002/nop2.35
PMID: 27708815
PMCID: PMC5047331
NLM abbreviation: Nurs Open
ISSN: 2054-1058
eISSN: 2054-1058
Publisher: Wiley
Number of pages: 10
Grant note: Hamilton Health Sciences Foundation
Language: English
Date published: 01/2016
Academic Unit: Nursing
Record Identifier: 9984370738002771

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