Journal article
Caregivers' Contributions to Heart Failure Self-care: An Updated Systematic Review
The Journal of cardiovascular nursing, Vol.39(3), pp.266-278
05/2024
DOI: 10.1097/JCN.0000000000001060
PMCID: PMC11291720
PMID: 38306302
Abstract
A previous systematic review reporting the contributions of informal, unpaid caregivers to patient heart failure (HF) self-care requires updating to better inform research, practice, and policy.
The aim of this study was to provide an updated review answering the questions: (1) What specific activities do informal caregivers of adults with HF take part in related to HF self-care? (2) Have the activities that informal caregivers of adults with HF take part in related to HF self-care changed over time? (3) What are the gaps in the science?
This review followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. PubMed, CINAHL, EMBASE, and Cochrane CENTRAL databases were searched. Eligible studies involved an informal, unpaid caregiver of an adult with HF as a study variable or participant. Caregiving activities were benchmarked using the theory of self-care in chronic illness.
Two thousand one hundred fifty-four research reports were identified, of which 64 met criteria. Caregivers' contributions occurred in self-care maintenance (91%), monitoring (54%), and management (46%). Activities performed directly on or to the patient were reported more frequently than activities performed for the patient. Change over time involved the 3 domains differentially. Gaps include ambiguous self-care activity descriptions, inadequate caregiving time quantification, and underrepresented self-care monitoring, supportive, and communication activities.
Newly identified caregiver-reported activities support updating the theory of self-care in chronic illness to include activities currently considered ancillary to HF self-care. Identified gaps highlight the need to define specific caregiving activities, determine task difficulty and burden, and identify caregiver self-care strategy and education needs. Exposing the hidden work of caregiving is essential to inform policy and practice.
Details
- Title: Subtitle
- Caregivers' Contributions to Heart Failure Self-care: An Updated Systematic Review
- Creators
- Harleah G BuckChelsea HowlandMichael A StawnychyHeba AldossaryYamnia I CortésJennifer DeBergAngela DuranteLucinda J GravenElliane IraniSaida JaboobAngela MassouhNatany da Costa Ferreira OberfrankMartha Abshire SaylorRachel K WionJulie T Bidwell
- Resource Type
- Journal article
- Publication Details
- The Journal of cardiovascular nursing, Vol.39(3), pp.266-278
- DOI
- 10.1097/JCN.0000000000001060
- PMID
- 38306302
- PMCID
- PMC11291720
- NLM abbreviation
- J Cardiovasc Nurs
- eISSN
- 1550-5049
- Language
- English
- Electronic publication date
- 02/01/2024
- Date published
- 05/2024
- Academic Unit
- Nursing; Center for Social Science Innovation; Hardin Library; University College Courses
- Record Identifier
- 9984554860002771
Metrics
40 Record Views