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Colonoscopy use following mutation detection in Lynch syndrome: Exploring a role for cancer screening in adaptation
Journal article   Open access   Peer reviewed

Colonoscopy use following mutation detection in Lynch syndrome: Exploring a role for cancer screening in adaptation

Donald W Hadley, Sato Ashida, Jean F Jenkins, Kathleen A Calzone, Ilan R Kirsch and Laura M Koehly
Clinical genetics, Vol.79(4), pp.321-328
04/2011
DOI: 10.1111/j.1399-0004.2010.01622.x
PMCID: PMC3407565
PMID: 21204803
url
https://doi.org/10.1111/j.1399-0004.2010.01622.xView
Published (Version of record) Open Access

Abstract

Lynch syndrome is the most common inherited form of colorectal cancer. Mutation carriers can reduce the morbidity and mortality associated with colorectal cancer through colonoscopy. Theoretical models suggest that such health related behaviors might also bring psychological benefits. This study assessed whether colonoscopy following mutation detection was associated with levels of depressive symptoms. Data were obtained from a prospective family cohort study offering genetic services for Lynch syndrome. Participants completed questionnaires prior to the provision of services and 6-months post receipt of mutation results. One hundred thirty four (134) persons were identified to carry a mutation and completed both questionnaires. Main outcome measures were depressive symptoms 6-months post-receipt of test results. Mutation carriers who did not complete a colonoscopy within the 6 months following receipt of results were 6 times (p<0.01; OR=6.06) more likely to report depressive symptoms at a level of clinical importance compared to those who did undergo colonoscopy. Facilitating the expeditious use of colonoscopy following mutation detection may benefit newly identified mutation carriers by addressing the objective risks for cancer and moderating underlying emotional distress responses to genetic risk information. Further, depressive symptoms may interfere with behavioral compliance in some patients, suggesting referral to mental health specialists.
Colonoscopy genetic testing health behavior HNPCC Lynch syndrome

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