Common Data Element for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage: Recommendations from Assessments and Clinical Examination Workgroup/Subcommittee

Rahul Damani; Stephan Mayer; Raj Dhar; Renee H Martin; Paul Nyquist; DaiWai M Olson; Jorge H Mejia-Mantilla; Susanne Muehlschlegel; Edward C Jauch; J Mocco; Tatsushi Mutoh; Jose I Suarez; Unruptured Intracranial Aneurysms and SAH CDE Project Investigators

doi:10.1007/s12028-019-00736-1

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Common Data Element for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage: Recommendations from Assessments and Clinical Examination Workgroup/Subcommittee

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Common Data Element for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage: Recommendations from Assessments and Clinical Examination Workgroup/Subcommittee

Rahul Damani, Stephan Mayer, Raj Dhar, Renee H Martin, Paul Nyquist, DaiWai M Olson, Jorge H Mejia-Mantilla, Susanne Muehlschlegel, Edward C Jauch, J Mocco, …

Neurocritical care, Vol.30(Suppl 1), pp.28-35

06/2019

DOI: 10.1007/s12028-019-00736-1

PMID: 31090013

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https://pure.amsterdamumc.nl/ws/files/156955510/Common-data-element-for-unruptured-intracranial-aneurysm-and-subarachnoid-hemorrhage-recommendations-from-assessments-a.pdfView

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Abstract

Clinical studies of subarachnoid hemorrhage (SAH) and unruptured cerebral aneurysms lack uniformity in terms of variables used for assessments and clinical examination of patients which has led to difficulty in comparing studies and performing meta-analyses. The overall goal of the National Institute of Health/National Institute of Neurological Disorders and Stroke Unruptured Intracranial Aneurysms (UIA) and subarachnoid hemorrhage (SAH) Common Data Elements (CDE) Project was to provide common definitions and terminology for future unruptured intracranial aneurysm and SAH research. This paper summarizes the recommendations of the subcommittee on SAH Assessments and Clinical Examination. The subcommittee consisted of an international and multidisciplinary panel of experts in UIA and SAH. Consensus recommendations were developed by reviewing previously published CDEs for other neurological diseases including traumatic brain injury, epilepsy and stroke, and the SAH literature. Recommendations for CDEs were classified by priority into "core," "supplemental-highly recommended," "supplemental" and "exploratory." We identified 248 variables for Assessments and Clinical Examination. Only the World Federation of Neurological Societies grading scale was classified as "Core." The Glasgow Coma Scale was classified as "Supplemental-Highly Recommended." All other Assessments and Clinical Examination variables were categorized as "Supplemental." The recommended Assessments and Clinical Examination variables have been collated from a large number of potentially useful scales, history, clinical presentation, laboratory, and other tests. We hope that adherence to these recommendations will facilitate the comparison of results across studies and meta-analyses of individual patient data.

United States

National Institute of Neurological Disorders and Stroke (U.S.)

National Library of Medicine (U.S.)

Subarachnoid Hemorrhage - physiopathology

Aneurysm, Ruptured - physiopathology

Glasgow Coma Scale

Humans

Intracranial Aneurysm

Biomedical Research

Common Data Elements

Details

Title: Subtitle: Common Data Element for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage: Recommendations from Assessments and Clinical Examination Workgroup/Subcommittee
Creators: Rahul Damani - Department of Neurology, Baylor College of Medicine, Houston, TX, USA
Stephan Mayer - Department of Neurology, Henry Ford Hospital, Detroit, MI, USA
Raj Dhar - Department of Neurology, Washington University School of Medicine, St Louis, MO, USA
Renee H Martin - Department of Public Health Sciences, Medical University of South Carolina, Charleston, SC, USA
Paul Nyquist - Neurosciences Critical Care, Departments of Anesthesiology and Critical Care Medicine, Neurology, and Neurosurgery, The Johns Hopkins University School of Medicine, 1800 Orleans Street, Zayed 3014C, Baltimore, MD, 21287, USA
DaiWai M Olson - Department of Neurology and Neurotherapeutics, UT Southwestern Medical Center, Dallas, TX, USA
Jorge H Mejia-Mantilla - Fundacion Valle del Lili, Cali, Colombia
Susanne Muehlschlegel - Department of Neurology, University of Massachusetts Medical School, Worcester, MA, USA
Edward C Jauch - Department of Emergency Medicine, Medical University of South Carolina, Charleston, SC, USA
J Mocco - Department of Neurosurgery, Icahn School of Medicine at Mount Sinai, New York, NY, USA
Tatsushi Mutoh - Department of Surgical Neurology, Research Institute for Brain and Blood Vessels, Akita, Japan
Jose I Suarez - Neurosciences Critical Care, Departments of Anesthesiology and Critical Care Medicine, Neurology, and Neurosurgery, The Johns Hopkins University School of Medicine, 1800 Orleans Street, Zayed 3014C, Baltimore, MD, 21287, USA. jsuarez5@jhmi.edu
Unruptured Intracranial Aneurysms and SAH CDE Project Investigators
Contributors: Colin P Derdeyn (Contributor) - University of Iowa, Radiology
Resource Type: Journal article
Publication Details: Neurocritical care, Vol.30(Suppl 1), pp.28-35
DOI: 10.1007/s12028-019-00736-1
PMID: 31090013
NLM abbreviation: Neurocrit Care
ISSN: 1541-6933
eISSN: 1556-0961
Publisher: United States
Grant note: HHSN271201200034C / NINDS NIH HHS N/A / CHI St Luke's Medical Center N/A / Neurocritical Care Society
Language: English
Date published: 06/2019
Academic Unit: Neurology; Radiology; Iowa Neuroscience Institute; Neurosurgery
Record Identifier: 9984070651502771

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