Journal article
Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
Kidney international, Vol.92(4), pp.796-808
10/2017
DOI: 10.1016/j.kint.2017.06.018
PMCID: PMC6685068
PMID: 28938953
Abstract
Rare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation of advances in research to clinical care, and provision of practical and integrated patient support. Thus, by a process of consensus, guidance for addressing these challenges was developed and is presented here.
Details
- Title: Subtitle
- Common Elements in Rare Kidney Diseases: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference
- Creators
- Ségolène Aymé - InsermDetlef Bockenhauer - University College LondonSimon Day - Clinical Trials Consulting and Training Limited, Buckingham, UKOlivier Devuyst - University of ZurichLisa M Guay-Woodford - Center for Translational Science, Children's National Health System, Washington, DC, USAJulie R Ingelfinger - Harvard UniversityJon B Klein - University of LouisvilleNine V.A.M Knoers - Utrecht UniversityRonald D Perrone - Tufts UniversityJulia Roberts - Polycystic Kidney Disease FoundationFranz Schaefer - Heidelberg UniversityVicente E Torres - Mayo ClinicMichael Cheung - Kidney Disease: Improving Global Outcomes, Brussels, BelgiumDavid C Wheeler - University College LondonWolfgang C Winkelmayer - Baylor College of MedicineAris AngelisCorinne AntignacKyongtae BaeCarsten BergmannAnthony J BleyerMarjolein BosKlemens BuddeKatherine BullDominique ChauveauAvital CnaanMartina CornelEtienne CosynsJane de la FosseJie DingSusie GearTimothy H.J GoodshipPaul GoodyerOliver GrossNicole HarrPeter C HarrisTess HarrisJulia HöfeleMarie C HoganEwout HoornShigeo HorieClifford E KashtanLarissa KerecukRobert KletaMartin KonradCraig B LangmanSegundo MarizGayle McKerracherAnnet NieuwenhovenDwight OdlandEric OlingerAlberto OrtizYork PeiYves PirsonBrian L RaynerGiuseppe RemuzziDaniel RenaultRémi SalomonAude ServaisRichard J SmithNeveen A SolimanBénédicte StengelMarjolein StormRoser TorraWilliam van't HoffRosa Vargas-PoussouElizabeth VroomChristoph WannerHui-Kim YapImproving Global Outcomes (KDIGO) Controversies Conference Participants
- Resource Type
- Journal article
- Publication Details
- Kidney international, Vol.92(4), pp.796-808
- DOI
- 10.1016/j.kint.2017.06.018
- PMID
- 28938953
- PMCID
- PMC6685068
- NLM abbreviation
- Kidney Int
- ISSN
- 0085-2538
- eISSN
- 1523-1755
- Publisher
- Elsevier Inc
- Language
- English
- Date published
- 10/2017
- Academic Unit
- Roy J. Carver Department of Biomedical Engineering; Molecular Physiology and Biophysics; Anatomy and Cell Biology; Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Otolaryngology; Internal Medicine
- Record Identifier
- 9984256925702771
Metrics
16 Record Views