Comparison of perceptions of oral health-related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers

Richie Kohli; Steven Levy; Colleen M Kummet; Deborah V Dawson; Clark M Stanford

doi:10.1111/j.1754-4505.2011.00189.x

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Comparison of perceptions of oral health-related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers

Journal article

Open access

Peer reviewed

Comparison of perceptions of oral health-related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers

Richie Kohli, Steven Levy, Colleen M Kummet, Deborah V Dawson and Clark M Stanford

Special care in dentistry, Vol.31(3), pp.88-94

05/2011

DOI: 10.1111/j.1754-4505.2011.00189.x

PMCID: PMC3105356

PMID: 21592162

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https://www.ncbi.nlm.nih.gov/pmc/articles/3105356View

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Abstract

The objective of this study was to assess the perceived oral health-related quality of life (OHQoL) of adolescents affected with one of the ectodermal dysplasias (EDs). Data were collected from 2003 to 2007 in a cross-sectional study of a convenience sample of individuals affected by ED (n = 35) using the Child Perceptions Questionnaire (CPQ11-14) for children and the Parent-Caregiver Perceptions Questionnaire for their caregivers. The main findings of this study were that individuals who were affected with ED in the older age group (15- to 19-year-olds) perceived more functional problems than younger individuals (11- to 14-year-olds) (p= .04). Females with ED (n = 13) perceived more emotional problems than males (n = 22; p= .01). Although caregivers tended to report slightly higher OHQoL scores (indicating worse OHQoL), no significant differences were observed between children's and parents' total OHQoL and individual domains' median scores (p > .05). Thus, the perceptions of oral health and well-being may vary by age and gender for children who have ED. Caution is warranted concerning using parents as proxies for their children when assessing the child's OHQoL.

Age Factors

Affect - classification

Humans

Male

Mouth Diseases - psychology

Eating - physiology

Young Adult

Parents - psychology

Female

Mastication - physiology

Sleep - physiology

Child

Interpersonal Relations

Denture, Partial, Removable - psychology

Cross-Sectional Studies

Attitude to Health

Caregivers - psychology

Feeding Behavior

Ectodermal Dysplasia - psychology

Emotions

Ectodermal Dysplasia - classification

Adolescent

Sex Factors

Quality of Life

Crowns - psychology

Oral Health

Details

Title: Subtitle: Comparison of perceptions of oral health-related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers
Creators: Richie Kohli - TMD and Orofacial Pain Division, University of Minnesota, Minneapolis, Minnesota, USA. kohli007@umn.edu
Steven Levy
Colleen M Kummet
Deborah V Dawson
Clark M Stanford
Resource Type: Journal article
Publication Details: Special care in dentistry, Vol.31(3), pp.88-94
DOI: 10.1111/j.1754-4505.2011.00189.x
PMID: 21592162
PMCID: PMC3105356
NLM abbreviation: Spec Care Dentist
ISSN: 1754-4505
eISSN: 1754-4505
Publisher: United States
Grant note: UL1 RR024979 / NCRR NIH HHS UL1RR024979 / NCRR NIH HHS UL1 RR024979-04 / NCRR NIH HHS
Language: English
Date published: 05/2011
Academic Unit: Preventive and Community Dentistry; Epidemiology; Biostatistics; Prosthodontics; Orthopedics and Rehabilitation; Pediatric Dentistry; Craniofacial Anomalies Research Center; Dental Research
Record Identifier: 9983917686502771

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