Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making

David A Axelrod; Crystal S Kynard-Amerson; David Wojciechowski; Marie Jacobs; Krista L Lentine; Mark Schnitzler; John D Peipert; Amy D Waterman

doi:10.1111/ctr.12944

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Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making

Journal article

Peer reviewed

Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making

David A Axelrod, Crystal S Kynard-Amerson, David Wojciechowski, Marie Jacobs, Krista L Lentine, Mark Schnitzler, John D Peipert and Amy D Waterman

Clinical transplantation, Vol.31(5), e12944

05/2017

DOI: 10.1111/ctr.12944

PMID: 28263408

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Abstract

Patients considering renal transplantation face an increasingly complex array of choices as a result of the revised kidney transplant allocation system. Decision aids have been shown to improve patient decision-making through the provision of detailed, relevant, individualized clinical data. A mobile iOS-based application (app) including animated patient education and individualized risk-adjusted outcomes following kidney transplants with varying donor characteristics and DSA waiting times was piloted in two large US transplant programs with a diverse group of renal transplant candidates (N = 81). The majority (86%) of patients felt that the app improved their knowledge and was culturally appropriate for their race/ethnicity (67%-85%). Patients scored significantly higher on transplant knowledge testing (9.1/20 to 13.8/20, P < .001) after viewing the app, including patients with low health literacy (8.0 to 13.0, P < .001). Overall knowledge of and interest in living and deceased donor kidney transplantation increased. This pilot project confirmed the benefit and cultural acceptability of this educational tool, and further refinement will explore how to better communicate the risks and benefits of nonstandard donors.

Adult

Aged

Cell Phone - utilization

Cultural Competency

Decision Making

Female

Follow-Up Studies

Health Knowledge, Attitudes, Practice

Humans

Kidney Transplantation

Living Donors

Male

Middle Aged

Patient Education as Topic

Pilot Projects

Tissue and Organ Procurement

Transplant Recipients - education

Young Adult

Details

Title: Subtitle: Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making
Creators: David A Axelrod - East Carolina University
Crystal S Kynard-Amerson - University of California, Los Angeles
David Wojciechowski - Massachusetts General Hospital
Marie Jacobs - Massachusetts General Hospital
Krista L Lentine - Abdominal Transplant Center, St. Louis University, St. Louis, MO, USA
Mark Schnitzler - Saint Louis University
John D Peipert - University of California, Los Angeles
Amy D Waterman - University of California, Los Angeles
Resource Type: Journal article
Publication Details: Clinical transplantation, Vol.31(5), e12944
DOI: 10.1111/ctr.12944
PMID: 28263408
NLM abbreviation: Clin Transplant
ISSN: 0902-0063
eISSN: 1399-0012
Publisher: Wiley
Language: English
Date published: 05/2017
Academic Unit: Surgery
Record Identifier: 9984322823802771

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