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Demographic characteristics, care, and outcomes for children with oral clefts in three states using participants from the National Birth Defects Prevention Study
Journal article   Peer reviewed

Demographic characteristics, care, and outcomes for children with oral clefts in three states using participants from the National Birth Defects Prevention Study

Peter Damiano, Margaret Tyler, Paul A Romitti, Charlotte Druschel, April A Austin, Whitney Burnett, Sara Kizelnik-Freilich and James M Robbins
The Cleft palate-craniofacial journal, Vol.46(6), pp.575-582
11/2009
DOI: 10.1597/07-237.1
PMCID: PMC6034623
PMID: 19860492
url
https://www.ncbi.nlm.nih.gov/pmc/articles/6034623View
Open Access

Abstract

The primary objective of this study was to evaluate whether there were differences in the characteristics and outcomes of care for children with oral clefts (OCs) among population-based samples in three states. Data on the health status and on speech and esthetic outcomes were collected using structured telephone interviews conducted during 2005-2006 with mothers of children with OCs aged 2 to 7 in Arkansas, Iowa, and New York. Mothers of children born with nonsyndromic OCs on or after January 1, 1998, and on or before December 31, 2003, in Arkansas, Iowa, or New York. Subjects were identified through their participation in the ongoing National Birth Defects Prevention Study. Demographic characteristics, rating of cleft care, severity of condition, health status, esthetic outcomes, and speech problems were evaluated by state of residence. Children with OCs from Arkansas were from lower income families, and their parents were less likely to be married. Children with OCs from Arkansas were more likely to have special health care needs and to require mental health care. Few differences were found across states in type of cleft, severity of cleft, or outcomes of cleft care. Combining results from population-based samples across multiple studies increases the variability of sample characteristics. Including multiple states can be an efficient way to learn more about the outcomes of medical care for less common conditions such as oral cleft.
 Cleft Lip - psychology Demography Humans Child, Preschool Infant Male Mothers Cleft Palate - therapy Socioeconomic Factors Cleft Palate - psychology Cleft Lip - therapy Female Interviews as Topic Iowa - epidemiology Registries Child Severity of Illness Index Esthetics Cleft Lip - epidemiology Treatment Outcome Mother-Child Relations Arkansas - epidemiology Speech Disorders - epidemiology Cleft Palate - epidemiology Health Status New York - epidemiology Population Surveillance Oral Health Policy

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