Development and Preliminary Evaluation of a Pain Management Manual for Hospice Providers to Support and Educate Family Caregivers

Nai-Ching Chi; Soojeong Han; Emelia Barani; Debra Parker Oliver; Karla T Washington; Frances Marcus Lewis; Amy Walker; George Demiris

doi:10.1177/1049909118804984

Journal article

Development and Preliminary Evaluation of a Pain Management Manual for Hospice Providers to Support and Educate Family Caregivers

Nai-Ching Chi, Soojeong Han, Emelia Barani, Debra Parker Oliver, Karla T Washington, Frances Marcus Lewis, Amy Walker and George Demiris

American journal of hospice & palliative medicine, Vol.36(3), pp.207-215

03/2019

DOI: 10.1177/1049909118804984

PMID: 30304938

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Abstract

Family caregivers encounter many barriers to managing patients' pain in the home hospice setting. However, there are limited clinically applicable resources for hospice providers to help family caregivers identify and address these barriers. To develop a pain management manual for hospice providers to support family caregivers and conduct a preliminary providers' evaluation of the manual. A pain management manual was developed and structured into 3 parts: (1) 5 common pain management case scenarios based on a secondary data analysis of a hospice clinical trial; (2) a list of suggested assessment questions and strategies for each case scenario was developed based on a caregiver framework; and (3) pain educational material was included from established clinical guidelines. The manual was vetted by 5 experts and then was evaluated by interviewing 25 hospice providers. Interview data were analyzed using thematic analysis. The hospice providers found that the manual could potentially serve as a reference in their practice and be a source for their continuing education. They suggested enhancing the clarity of the case scenarios and adding additional strategies to the manual. Moreover, they suggested expanding the paper-based version and developing a web-based platform to deliver the content would maximize its utility. The manual has the potential to be integrated into routine hospice care to improve the quality of pain management.

Caregivers

Education

Hospice Care

Palliative Care

family caregivers

pain management

end-of-life care

Details

Title: Subtitle: Development and Preliminary Evaluation of a Pain Management Manual for Hospice Providers to Support and Educate Family Caregivers
Creators: Nai-Ching Chi - College of Nursing, University of Iowa, Iowa City, IA, USA
Soojeong Han - Department of Biobehavioral Nursing and Health Informatics, School of Nursing, University of Washington, Seattle, WA, USA
Emelia Barani - Department of Biobehavioral Nursing and Health Informatics, School of Nursing, University of Washington, Seattle, WA, USA
Debra Parker Oliver - Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA
Karla T Washington - Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA
Frances Marcus Lewis - Public Health and Clinical Sciences Divisions, Fred Hutchinson Cancer Research Center, Seattle, WA, USA
Amy Walker - Department of Family and Child Nursing, School of Nursing, University of Washington, Seattle, WA, USA
George Demiris - Department of Biobehavioral Health Sciences, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
Resource Type: Journal article
Publication Details: American journal of hospice & palliative medicine, Vol.36(3), pp.207-215
DOI: 10.1177/1049909118804984
PMID: 30304938
NLM abbreviation: Am J Hosp Palliat Care
ISSN: 1049-9091
eISSN: 1938-2715
Publisher: United States
Grant note: DOI: 10.13039/100000056, name: Technologies Incubation Scholarship, Ministry of Education, Taiwan, award: R01NR012213 (PI: Demiris)
Language: English
Date published: 03/2019
Academic Unit: Iowa Neuroscience Institute; Nursing
Record Identifier: 9984064288402771

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