Journal article
Development and evaluation of a bladder Cancer specific survivorship care plan by patients and clinical care providers: a multi-methods approach
BMC health services research, Vol.20(1), pp.686-686
07/24/2020
DOI: 10.1186/s12913-020-05533-7
PMCID: PMC7379822
PMID: 32709234
Abstract
Background, context and purposeIn spite of the mixed evidence for their impact, survivorship Care Plans (SCPs) are recommended to enhance quality of care for cancer survivors. Data on the feasibility of SCPs in bladder cancer (BC) is sparse. Using a mixed-methods approach, this study describes the iterative development, acceptability and feasibility of BC specific SCP (BC-SCP) in clinical settings.MethodsIn Phase I, we developed the BC-SCP. In Phase II, we conducted four focus groups with 19 patients and 15 providers to examine its acceptability and usability challenges. Data analyses using the Atlas.ti program, informed refinement of the BC-SCP. In Phase III, we conducted feasibility testing of the refined BC-SCP with 18 providers from 12 health-centers. An encounter survey was completed after each assessment to examine the feasibility of the BC-SCP. Chi-square and Fisher Exact tests were used for comparative analyses.ResultsDuring phase I, we observed high patient and provider acceptability of the BC-SCP and substantial engagement in improving its content, design, and structure. In Phase II, providers completed 59BC-SCPs. Mean time for BC-SCP completion was 12.3min. Providers reported that BC-SCP content was clear, did not hamper clinic flow and was readily completed with easy-to-access information. Comparative analyses to examine differences in SCP completion time by patient clinico-demographic characteristics and provider type revealed no significant differences.ConclusionsOur BC-SCP has clinical relevance, and can be used in an active practice setting. However, considerable progress will be necessary to achieve implementation of and sharing the BC-SCP with patients and care providers, particularly within the electronic medical record. In summary, BC-SCPs are essential to improve the follow up care of BC survivors. Clinical resources are required to ensure appropriate implementation of BC-SCPs.Trial registrationStudy HUM00056082.
Details
- Title: Subtitle
- Development and evaluation of a bladder Cancer specific survivorship care plan by patients and clinical care providers: a multi-methods approach
- Creators
- Cheryl T. Lee - The Ohio State UniversityNihal E. Mohamed - Icahn School of Medicine at Mount SinaiSailaja Pisipati - University of Nevada, RenoQainat N. Shah - Icahn School of Medicine at Mount SinaiPiyush K. Agarwal - National Institutes of HealthTracy M. Downs - University of Wisconsin–MadisonMichael Droller - Icahn School of Medicine at Mount SinaiScott M. Gilbert - University of South FloridaHeather H. Goltz - Baylor College of MedicineSimon J. Hall - Hofstra UniversityMohamed Hendawi - The Ohio State UniversityJean Hoffman-Censits - Sidney Kimmel Comprehensive Cancer CenterMichael O'Donnell - Univ Iowa, Iowa City, IA USAMatthew Kaag - Pennsylvania State UniversityLawrence Karsh - The Urology Center of ColoradoWassim Kassouf - McGill University Health CentreDiane Z. Quale - Bladder Cancer Advocacy NetworkArthur Sagalowsky - The University of Texas at DallasGary D. Steinberg - New York UniversityDavid M. Latini - Baylor College of Medicine
- Resource Type
- Journal article
- Publication Details
- BMC health services research, Vol.20(1), pp.686-686
- DOI
- 10.1186/s12913-020-05533-7
- PMID
- 32709234
- PMCID
- PMC7379822
- NLM abbreviation
- BMC Health Serv Res
- ISSN
- 1472-6963
- eISSN
- 1472-6963
- Publisher
- Springer Nature
- Number of pages
- 12
- Grant note
- Bladder Cancer Advocacy Network (BCAN)
- Language
- English
- Date published
- 07/24/2020
- Academic Unit
- Urology
- Record Identifier
- 9984320857702771
Metrics
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