Journal article
Development of an Evaluation Tool for Monitoring the Delivery of Psychosocial Care in Pediatric Oncology Settings
Cancers, Vol.17(9), 1550
05/02/2025
DOI: 10.3390/cancers17091550
PMCID: PMC12071973
PMID: 40361476
Abstract
In January of 2019, the University of Iowa Stead Family Children’s Hospital (UI SFCH) formalized their Pediatric Psychosocial Oncology Program by utilizing 15 evidence-based Standards for Psychosocial Care for Children with Cancer and Families as a foundation for program development. The psychosocial oncology clinical team members identified ongoing gaps in care and a need to improve progress toward achieving these standards. Reviewing and analyzing the Pediatric Psychosocial Standard of Care Institutional Assessment Tool further highlighted the need for program development but also demonstrated the need to design institutionally specific objective measures to monitor program improvements over time. The current project focused on the creation of a program evaluation system with objective measures specific to the UI SFCH practice setting. Barriers such as staffing and cost were identified and addressed. Additionally, a REDCap® database using a structured chart review as its foundation was initiated, which permitted the comprehensive evaluation of the standards of care at UI SFCH. The Matrix and Guidelines included in the Pediatric Psychosocial Standard of Care Institutional Assessment Tool comprised the framework to develop institution specific objective measurements for each standard of care. The objective measures of interest were social work assessments and provider biopsychosocial assessments. Data were exported and uploaded to a statistical program for data analysis. The statistical significance of percentage changes was evaluated with a one-tailed t-test; p values < 0.05 were considered significant. The development of this REDCap® database project allowed for the evaluation of the program’s current efficiency in implementing the PSCPCC standards of care. Using the database in the future will allow psychosocial oncology team members to easily identify other areas for improvement and to ensure that all 15 standards of psychosocial care are being comprehensively addressed in the care of pediatric oncology patients and interactions with their families.
Details
- Title: Subtitle
- Development of an Evaluation Tool for Monitoring the Delivery of Psychosocial Care in Pediatric Oncology Settings
- Creators
- Kristin Foster - University of IowaAmy L. Conrad - University of IowaBethany Sadler - University of IowaAmanda Grafft - University of Iowa
- Resource Type
- Journal article
- Publication Details
- Cancers, Vol.17(9), 1550
- DOI
- 10.3390/cancers17091550
- PMID
- 40361476
- PMCID
- PMC12071973
- NLM abbreviation
- Cancers (Basel)
- ISSN
- 2072-6694
- eISSN
- 2072-6694
- Publisher
- MDPI; BASEL
- Grant note
- UI Institutional Grant Reward through Dance Marathon organizationNational Center for Advancing Translational Sciences of the National Institutes of Health: UM1TR004403
This study has been supported by UI Institutional Grant Reward through Dance Marathon organization. Research reported in this publication was supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under Award Number UM1TR004403. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
- Language
- English
- Date published
- 05/02/2025
- Academic Unit
- Psychiatry; Pediatric Psychology; Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Craniofacial Anomalies Research Center; Nursing
- Record Identifier
- 9984820573402771
Metrics
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