Journal article
End of Life and Women Aging with a Disability
Journal of palliative medicine, Vol.15(6), pp.667-671
06/01/2012
DOI: 10.1089/jpm.2011.0506
PMCID: PMC3362956
PMID: 22536990
Abstract
Approximately 21 million noninstitutionalized Americans with physical disabilities will ultimately face end-of-life [EOL] issues. Studies have documented disparate care and poorer outcomes for persons with preexisting disabilities who have life-limiting illnesses, which raises the question of how EOL experiences may differ for these individuals. The aim of this qualitative, descriptive study was to explore how EOL issues might emerge within the life stories of women aging with functional disabilities. Interview data were obtained from a larger, ongoing ethnographic study focused on the creation of an explanatory model of health disparities of disablement in women with mobility impairment. Each participant was interviewed three to four times using a life-course perspective that captures life trajectories and transitions experienced over time. For this analysis, 41 interviews were selected from 20 participants who discussed issues related to death and dying. Content analysis of the data revealed five analytic categories: death as a signpost, impact of others' deaths, deaths that affected personal insights and choice, EOL possibilities, and a personal brush with death. EOL issues were manifested in a variety of ways that revealed both determination to remain as independent as possible within the context of declining functional ability and uncertainty regarding the future.
Details
- Title: Subtitle
- End of Life and Women Aging with a Disability
- Creators
- Deborah L. Volker - The University of Texas at AustinCynthia Zolnierek - The University of Texas at AustinTracie Harrison - The University of Texas at AustinJaniece Walker - The University of Texas at Austin
- Resource Type
- Journal article
- Publication Details
- Journal of palliative medicine, Vol.15(6), pp.667-671
- Publisher
- Mary Ann Liebert Inc
- DOI
- 10.1089/jpm.2011.0506
- PMID
- 22536990
- PMCID
- PMC3362956
- ISSN
- 1096-6218
- eISSN
- 1557-7740
- Number of pages
- 5
- Grant note
- R01NR010360 / NATIONAL INSTITUTE OF NURSING RESEARCH; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR) R01 NR010360 / National Institutes of Health/National Institute of Nursing Research; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
- Language
- English
- Date published
- 06/01/2012
- Academic Unit
- Nursing
- Record Identifier
- 9984696576402771
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