Journal article
Everything They Were Discussing, We Were Already Doing Hospice Heart Failure Caregivers Reflect on a Palliative Caregiving Intervention
Journal of hospice and palliative nursing, Vol.15(4), pp.218-224
06/01/2013
DOI: 10.1097/NJH.0b013e3182777738
PMCID: PMC3706191
PMID: 23853527
Abstract
There is little to no evidence concerning the efficacy of heart failure caregiver interventions in hospice populations. The objective of this study was to examine heart failure caregivers' responses to a hospice caregiving intervention and elicit recommendations for future interventions. A qualitative descriptive design was used with a one-time semistructured interview conducted within 2 weeks of completing the intervention. The interview began with general questions related to the helpfulness of the intervention and continued with probes regarding the particular parts of the intervention used to explore more deeply the caregivers' perceptions. Analysis involved constant comparison of the interview transcriptions according to established approaches with codes generated through a line-by-line reading of the interviews by two investigators. A sample (n = 7) made up of spouses, adult children, and sibling caregivers responded to the intervention based on their length of caregiving (with early caregivers embracing the intervention, experienced caregivers ignoring it) and experience with hospice. They were able to give detailed feedback and make recommendations for future studies-targeting less experienced caregivers, discussing multimorbid symptom management, and streamlining the information and contact with help. Heart failure caregivers recommend providing interventions earlier (or upstream) in the disease trajectory.
Details
- Title: Subtitle
- Everything They Were Discussing, We Were Already Doing Hospice Heart Failure Caregivers Reflect on a Palliative Caregiving Intervention
- Creators
- Harleah G. Buck - Pennsylvania State UniversityCheryl H. Zambroski - Univ S Florida, Coll Nursing, Tampa, FL USAChris Garrison - St Petersburg Coll, Dept Nursing, St Petersburg, FL USASusan C. McMillan - Univ S Florida, Coll Nursing, Tampa, FL USA
- Resource Type
- Journal article
- Publication Details
- Journal of hospice and palliative nursing, Vol.15(4), pp.218-224
- DOI
- 10.1097/NJH.0b013e3182777738
- PMID
- 23853527
- PMCID
- PMC3706191
- NLM abbreviation
- J Hosp Palliat Nurs
- ISSN
- 1522-2179
- eISSN
- 1539-0705
- Publisher
- Lippincott Williams & Wilkins
- Number of pages
- 7
- Grant note
- 1R21NR011224 / NINR; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR) R21NR011224 / NATIONAL INSTITUTE OF NURSING RESEARCH; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
- Language
- English
- Date published
- 06/01/2013
- Academic Unit
- Nursing
- Record Identifier
- 9984370656602771
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