Journal article
Examining Heart Failure Informal Care Partners Using Person and System Levels and Domains: A Meta-Synthesis
Western journal of nursing research, Vol.47(4), pp.261-281
04/2025
DOI: 10.1177/01939459251314716
PMID: 39888665
Abstract
Within the last decade, system and policy-level changes have driven substantial shifts in heart failure (HF) care from hospital to home, requiring greater support from informal care partners. What has not been examined is the state of the care partner science by person and system-level domains using qualitative studies to understand impact across multiple person and system levels.
(1) Identify by person and system levels and domain what is known about informal care partners and (2) Identify gaps in the caregiving science and suggest ways to move forward.
This secondary analysis of a large HF systematic review is guided by the National Institute on Minority Health and Health Disparities and MIRACLE frameworks and uses meta-synthesis techniques with critical realist approaches to synthesize and interpret the themes across papers.
Using data from 46 papers and 1695 care partners, we identified patterns occurring across 6 domains (biological, behavioral, affective, physical/built environment, sociocultural environment, and healthcare system) and on 4 levels (individual, interpersonal, community, and societal). Existing research predominantly addressed affective and behavioral domains, followed by health system and sociocultural domains. Few studies focused on biological and physical/built environment domains, leaving large gaps in what is known about caregiving at the cellular (biological) and societal (community and societal) levels.
HF caregiving continues to be studied at a very rudimentary level. This synthesis also reveals critical gaps in what is known about caregiving within the physical/built environment domain and at the community and societal levels.
Details
- Title: Subtitle
- Examining Heart Failure Informal Care Partners Using Person and System Levels and Domains: A Meta-Synthesis
- Creators
- Harleah G Buck - University of IowaAngela Durante - Fondazione Toscana Gabriele MonasterioChelsea Howland - University of IowaHeba Aldossary - Case Western Reserve UniversityJulie T Bidwell - UC Davis Health SystemElliane Irani - Case Western Reserve UniversityDaniel Liebzeit - University of IowaAngela Massouh - American University of BeirutMartha Abshire Saylor - Johns Hopkins UniversityMichael A Stawnychy - University of PennsylvaniaLucinda J Graven - Florida State University
- Resource Type
- Journal article
- Publication Details
- Western journal of nursing research, Vol.47(4), pp.261-281
- DOI
- 10.1177/01939459251314716
- PMID
- 39888665
- NLM abbreviation
- West J Nurs Res
- ISSN
- 1552-8456
- eISSN
- 1552-8456
- Publisher
- SAGE PUBLICATIONS INC
- Grant note
- National Institute of Child Health and Human Development Office of Women's Health: K12HD085845 IOWA Postdoctoral FellowshipUniversity of Iowa, College of NursingBarbara and Richard Csomay Center for Gerontological Excellence at the University of Iowa
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Dr. Howland received funding from IOWA Postdoctoral Fellowship, University of Iowa, College of Nursing and the Barbara and Richard Csomay Center for Gerontological Excellence at the University of Iowa and Dr. Saylor received funding from National Institute of Child Health and Human Development Office of Women's Health (K12HD085845). The content of this paper is solely the responsibility of the authors and does not necessarily represent the official views of the funder(s).
- Language
- English
- Electronic publication date
- 01/31/2025
- Date published
- 04/2025
- Academic Unit
- Nursing; Center for Social Science Innovation
- Record Identifier
- 9984781378002771
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