Journal article
Exploring the Challenges that Family Caregivers Faced When Caring for Hospice Patients with Heart Failure
Journal of social work in end-of-life & palliative care, Vol.14(2-3), pp.162-176
04/2018
DOI: 10.1080/15524256.2018.1461168
PMCID: PMC6274608
PMID: 29856280
Abstract
Although patients with heart disease comprise the second largest diagnostic group in hospice care, the challenges faced by family caregivers of hospice patients with heart failure are poorly understood and often go unaddressed. This study explored the challenges and needs of family caregivers of adults with advanced heart failure receiving hospice care in the home. The baseline quantitative and qualitative data from 28 family caregivers' participation in a large-scale hospice clinical trial of a problem-solving therapy intervention were analyzed. The quantitative data showed that family caregivers were mildly anxious and had worse financial and physical quality of life than their social and emotional quality of life. The qualitative data showed that caregiver challenges were related to patient care and symptom management, inadequate social support, communication issues, and financial concerns. The results provide insight to hospice social workers and researchers to develop practical tools that can be used in routine care to evaluate family caregivers' needs comprehensively.
Details
- Title: Subtitle
- Exploring the Challenges that Family Caregivers Faced When Caring for Hospice Patients with Heart Failure
- Creators
- Nai-Ching Chi - a College of Nursing , University of Iowa , Iowa City , Iowa , USAGeorge Demiris - b Department of Biobehavioral Health Sciences , School of Nursing, University of Pennsylvania , Philadelphia , Pennsylvania , USAKenneth C Pike - c Department of Psychosocial and Community Health , School of Nursing, University of Washington , Seattle , Washington , USAKarla Washington - d Department of Family and Community Medicine , School of Medicine, University of Missouri , Columbia , Missouri , USADebra Parker Oliver - d Department of Family and Community Medicine , School of Medicine, University of Missouri , Columbia , Missouri , USA
- Resource Type
- Journal article
- Publication Details
- Journal of social work in end-of-life & palliative care, Vol.14(2-3), pp.162-176
- DOI
- 10.1080/15524256.2018.1461168
- PMID
- 29856280
- PMCID
- PMC6274608
- NLM abbreviation
- J Soc Work End Life Palliat Care
- ISSN
- 1552-4256
- eISSN
- 1552-4264
- Publisher
- United States
- Grant note
- R01 NR012213 / NINR NIH HHS
- Language
- English
- Date published
- 04/2018
- Academic Unit
- Iowa Neuroscience Institute; Nursing
- Record Identifier
- 9984064299002771
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