Journal article
Factors enabling transplant program participation in the scientific registry of transplant recipients (srtr) living donor collective: a national survey
Clinical transplantation, Vol.37(4), e14908
04/2023
DOI: 10.1111/ctr.14908
PMCID: PMC10423496
PMID: 36622257
Abstract
The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant centers to register candidates while the SRTR conducts follow-up. To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from 10/26/2021-12/17/2021. We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and 8 liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Collaboration and investment to overcome barriers to program LDC participation are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant. This article is protected by copyright. All rights reserved.
Details
- Title: Subtitle
- Factors enabling transplant program participation in the scientific registry of transplant recipients (srtr) living donor collective: a national survey
- Creators
- Krista L Lentine - Saint Louis University HospitalMary Amanda Dew - University of PittsburghHuiling Xiao - Saint Louis University HospitalAddie Wisniewski - Saint Louis University HospitalMacey Levan - New York UniversityFawaz Al Ammary - University of California, IrvineAsif Sharfuddin - Indiana University – Purdue University IndianapolisDavid A Axelrod - University of IowaAmy D Waterman - Houston MethodistBertram Kasiske - Hennepin County Medical Center
- Resource Type
- Journal article
- Publication Details
- Clinical transplantation, Vol.37(4), e14908
- DOI
- 10.1111/ctr.14908
- PMID
- 36622257
- PMCID
- PMC10423496
- NLM abbreviation
- Clin Transplant
- ISSN
- 0902-0063
- eISSN
- 1399-0012
- Grant note
- R01 DK120551 / NIDDK NIH HHS K23 DK129820 / NIDDK NIH HHS
- Language
- English
- Electronic publication date
- 01/09/2023
- Date published
- 04/2023
- Academic Unit
- Surgery
- Record Identifier
- 9984359720802771
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