Journal article
Family Information Management in the Context of Inherited Conditions: An Integrative Review
Journal of family nursing, Vol.30(3), pp.232-254
08/2024
DOI: 10.1177/10748407241272196
PMID: 39194163
Abstract
This review aimed to develop a framework to understand the process of information management in families with inherited conditions. Electronic databases were searched for relevant peer-reviewed articles. Articles were included if they were original research on families affected by any confirmed inherited condition, described how a family accesses, interprets, conveys, and/or uses information about the disease, included the recruitment of more than one family member, and used family as the unit of analysis. Data were analyzed through directed content analysis. Thirty-four articles from 27 studies were analyzed. We propose a framework for family information management consisting of the following domains: contextual influences, family information management behaviors, and family information management outcomes. This proposed framework expands the understanding of how families manage their genetic information in making health care decisions for their affected and at-risk relatives.This review aimed to develop a framework to understand the process of information management in families with inherited conditions. Electronic databases were searched for relevant peer-reviewed articles. Articles were included if they were original research on families affected by any confirmed inherited condition, described how a family accesses, interprets, conveys, and/or uses information about the disease, included the recruitment of more than one family member, and used family as the unit of analysis. Data were analyzed through directed content analysis. Thirty-four articles from 27 studies were analyzed. We propose a framework for family information management consisting of the following domains: contextual influences, family information management behaviors, and family information management outcomes. This proposed framework expands the understanding of how families manage their genetic information in making health care decisions for their affected and at-risk relatives.
Details
- Title: Subtitle
- Family Information Management in the Context of Inherited Conditions: An Integrative Review
- Creators
- Peter James B AbadLisa L ShahSandra Daack-Hirsch
- Resource Type
- Journal article
- Publication Details
- Journal of family nursing, Vol.30(3), pp.232-254
- DOI
- 10.1177/10748407241272196
- PMID
- 39194163
- NLM abbreviation
- J Fam Nurs
- ISSN
- 1552-549X
- eISSN
- 1552-549X
- Publisher
- SAGE PUBLICATIONS INC
- Grant note
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Peter James Abad is supported by the Day Family Scholarship in Genetics at the University of Iowa College of Nursing as a PhD in Nursing student.
- Language
- English
- Electronic publication date
- 08/28/2024
- Date published
- 08/2024
- Academic Unit
- Nursing; Fraternal Order of Eagles Diabetes Research Center
- Record Identifier
- 9984699054102771
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