Journal article
Family Relationships Associated with Communication and Testing for Inherited Cardiac Conditions
Western journal of nursing research, Vol.41(11), pp.1576-1601
12/12/2018
DOI: 10.1177/0193945918817039
PMCID: PMC6561845
PMID: 30539690
Abstract
The purpose of this study was to identify characteristics of family relationships associated with communication of genetic risk and testing behaviors among at-risk relatives in families with an inherited cardiac condition. Data were collected from 53 patients and parents of children with an inherited cardiac condition through interviews, pedigrees, and surveys. Associations were examined among family relationship characteristics and whether at-risk relatives were informed about their risk and tested for disease. Of 1,178 at-risk relatives, 52.5% were informed about their risk and 52.1% of those informed were tested. Emotional closeness, relationship quality, and communication frequency had significant bivariate associations with genetic risk communication. Communication frequency was associated with genetic risk communication and testing in multivariate models. This study provides new insight into the extent of genetic risk communication and testing in families with inherited cardiac conditions. Family relationships, especially communication frequency, are critical factors in family communication of genetic risk.
Details
- Title: Subtitle
- Family Relationships Associated with Communication and Testing for Inherited Cardiac Conditions
- Creators
- Lisa L. Shah - University of PittsburghSandra Daack-Hirsch - University of IowaAnne L. Ersig - University of Wisconsin–MadisonAnthony Paik - University of Massachusetts AmherstFerhaan Ahmad - University of IowaJanet Williams - University of Iowa
- Resource Type
- Journal article
- Publication Details
- Western journal of nursing research, Vol.41(11), pp.1576-1601
- DOI
- 10.1177/0193945918817039
- PMID
- 30539690
- PMCID
- PMC6561845
- NLM abbreviation
- West J Nurs Res
- ISSN
- 0193-9459
- eISSN
- 1552-8456
- Grant note
- name: Midwest Nurses Research Society, award: Dissertation Grant; DOI: 10.13039/100000056, name: National Institute of Nursing Research, award: F31NR014758; DOI: 10.13039/100000056, name: National Institute of Nursing Research, award: T32NR009759
- Language
- English
- Date published
- 12/12/2018
- Academic Unit
- Radiology; Molecular Physiology and Biophysics; Cardiovascular Medicine; Nursing; Fraternal Order of Eagles Diabetes Research Center; Public Policy Center (Archive); Internal Medicine
- Record Identifier
- 9984283715602771
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