Journal article
Health-related quality of life among preadolescent children with oral clefts: the mother's perspective
Pediatrics (Evanston), Vol.120(2), pp.e283-e290
08/2007
DOI: 10.1542/peds.2006-2091
PMID: 17671039
Abstract
The purpose of this study was to evaluate the factors that affect the health-related quality of life of preadolescent children with nonsyndromic oral clefts using the Pediatric Quality of Life Inventory instrument and to evaluate whether there were any differences related to the type of cleft or other factors. Data for this study were derived from telephone interviews with the parents of a statewide population of children who were in the Iowa Registry for Congenital and Inherited Disorders, were aged 2 to 12 years, had nonsyndromic oral clefts, and were born in Iowa between January 1, 1990, and December 31, 2000. Twenty-minute interviews were conducted with mothers of 104 children in the spring and summer of 2003; respondents then completed and mailed back Pediatric Quality of Life Inventory surveys 2 to 3 weeks after the interviews (69% participation rate). After controlling for demographic characteristics, children with less severe speech problems had higher total Pediatric Quality of Life Inventory scores as well as higher physical and psychosocial health domain scores. Age and cleft type interacted, with younger children (aged 2-7 years) with a cleft lip or cleft lip and palate having higher health-related quality of life scores than children with an isolated cleft palate; however, this pattern was reversed for older children (aged 8-12 years). Speech and aesthetic concerns seem to have been important factors affecting the health-related quality of life for children with oral clefts. These factors seem to be more important as children get closer to adolescence (ages 8-12 years) when acceptance by peers becomes more critical.
Details
- Title: Subtitle
- Health-related quality of life among preadolescent children with oral clefts: the mother's perspective
- Creators
- Peter C Damiano - DDS, Health Policy Research Program, University of Iowa, Public Policy Center, 227 S Quadrangle, Iowa City, IA 52242, USA. peter-damiano@uiowa.eduMargaret C TylerPaul A RomittiElizabeth T MomanyMichael P JonesJohn W CanadyMichael P KarnellJeffrey C Murray
- Resource Type
- Journal article
- Publication Details
- Pediatrics (Evanston), Vol.120(2), pp.e283-e290
- DOI
- 10.1542/peds.2006-2091
- PMID
- 17671039
- NLM abbreviation
- Pediatrics
- ISSN
- 0031-4005
- eISSN
- 1098-4275
- Publisher
- United States
- Grant note
- U50/CCU 7132380 / PHS HHS P60 DE-13076 / NIDCR NIH HHS
- Language
- English
- Date published
- 08/2007
- Academic Unit
- Preventive and Community Dentistry; Communication Sciences and Disorders; Health Management and Policy; Biostatistics; Pediatric Dentistry; Craniofacial Anomalies Research Center; Nursing; Otolaryngology; Statistics and Actuarial Science; Anatomy and Cell Biology; International Programs; Stead Family Department of Pediatrics; Epidemiology; Public Policy Center (Archive); Dental Research; University College Courses
- Record Identifier
- 9983917679802771
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