Journal article
Health-related quality of life in children with cerebral palsy associated with congenital Zika infection Qualidade de vida relacionada ? sa?de em crian?as com paralisia cerebral associada a s?ndrome da Zika cong?nita
Revista paulista de pediatria, Vol.41, e2022016
01/01/2023
DOI: 10.1590/1984-0462/2023/41/2022016
PMCID: PMC10088476
PMID: 37042942
Abstract
Objective: To describe the health-related quality of life (QOL) in children with cerebral palsy (CP) associated with congenital Zika infection.Methods: Cross-sectional study of a consecutive series of children, followed in a referral multicentric rehabilitation network in Brazil. We invited the caregivers to respond to the Brazilian version of the Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILDTM) questionnaire. Statistical analysis was performed with the Statistical Package for the Social Sciences (SPSS) 26.0T". We used absolute and relative frequencies for categorical variables and mean and standard deviation for continuous variables.Results: The sample consisted of 193 children, at mean age of 50.3 +/- 7.6 months. We observed a predominance of children with cerebral palsy (CP) with Gross Motor Function Classification System (GMFCS) level V (93.7%). Epilepsy (88.4%) was the most common comorbidity. CPCHILDTM mean scores were activities of daily living (ADL)/personal care 43.2 +/- 12.6; positioning, transferring and mobility 33.7 +/- 16.5; comfort and emotions 84.4 +/- 15.2; communication and social interaction (CoSI) 48.2 +/- 24.3; health 70.9 +/- 17.1; and overall quality of life (OQOL) 72.1 +/- 17.1. Total score was 54.8 +/- 11.3.Conclusions: Among children with cerebral palsy (CP) related to congenital Zika syndrome, the quality of life (QOL) scores were very similar to other populations with cerebral palsy (CP). The activities of positioning, transferring and mobility had the greatest impact on health-related quality of life (QOL). Rehabilitation strategies and public policies should prioritize aspects related to mobility for this population.
Details
- Title: Subtitle
- Health-related quality of life in children with cerebral palsy associated with congenital Zika infection Qualidade de vida relacionada ? sa?de em crian?as com paralisia cerebral associada a s?ndrome da Zika cong?nita
- Creators
- Fernanda Jordao Pinto Marques - Rede SARAH Hosp Reabilitacao, Rio De Janeiro, RJ, BrazilAlessandra Lemos de CarvalhoEliana Valverde Magro Borigato - Rede SARAH Hosp Reabilitacao, Brasilia, DF, BrazilLuiz Felipe Vieira de Oliveira - Rede SARAH Hosp Reabilitacao, Fortaleza, CE, BrazilLenamaris Mendes Rocha Duarte - Rede SARAH Hosp Reabilitacao, Brasilia, DF, BrazilAdriana Goncalves da Silva - Rede SARAH Hosp Reabilitacao, Brasilia, DF, BrazilClaret Luiz Dias Amarante - Rede SARAH Hosp Reabilitacao, Rio De Janeiro, RJ, BrazilLaura Jacome de Melo Pereira - Rede SARAH Hosp Reabilitacao, Sao Luis, MA, BrazilElise Ferreira Tavares - Rede SARAH Hosp Reabilitacao, Fortaleza, CE, BrazilLilian Gleice de Sena da Costa - Rede SARAH Hosp Reabilitacao, Sao Luis, MA, BrazilCarolina Alves Rezende Alcantara - Rede SARAH Hosp Reabilitacao, Sao Luis, MA, BrazilAndrea Nakamura Salinas - Rede SARAH Hosp Reabilitacao, Sao Luis, MA, BrazilFernanda de Lourdes da Cunha Pinto - Rede SARAH Hosp Reabilitacao, Belem, PA, BrazilGerliane Carvalho de Alcantara - Rede SARAH Hosp Reabilitacao, Belem, PA, BrazilFabiana Utsch - Rede SARAH Hosp Reabilitacao, Belo Horizonte, MG, BrazilCinthia Ramos Diniz Silva - Rede SARAH Hosp Reabilitacao, Belo Horizonte, MG, BrazilDirlene Araujo dos Reis - Rede SARAH Hosp Reabilitacao, Macapa, AP, BrazilWilerson Marques Bessa - Rede SARAH Hosp Reabilitacao, Macapa, AP, BrazilRafaela Christine Dutra - Rede SARAH Hosp Reabilitacao, Macapa, AP, BrazilPaloma VenturaTatiana Souza Oliveira
- Resource Type
- Journal article
- Publication Details
- Revista paulista de pediatria, Vol.41, e2022016
- DOI
- 10.1590/1984-0462/2023/41/2022016
- PMID
- 37042942
- PMCID
- PMC10088476
- NLM abbreviation
- Rev Paul Pediatr
- ISSN
- 0103-0582
- eISSN
- 1984-0462
- Publisher
- SOC PEDIATRIA SAO PAULO
- Number of pages
- 8
- Language
- English
- Date published
- 01/01/2023
- Academic Unit
- Stead Family Department of Pediatrics
- Record Identifier
- 9984945917202771
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