Journal article
Heart Failure Self-care Within the Context of Patient and Informal Caregiver Dyadic Engagement A Mixed Methods Study
The Journal of cardiovascular nursing, Vol.33(4), pp.384-391
07/2018
DOI: 10.1097/JCN.0000000000000465
PMID: 29601368
Abstract
Background: Recent heart failure (HF) patient and informal caregiver (eg, dyadic) studies have either examined self-care from a qualitative or quantitative perspective. To date, the 2 types of data have not been integrated. Objective: The aim of this study was to understand HF self-care within the context of dyadic engagement. Methods: This was a cross-sectional, mixed methods (quantitative/qualitative) study. Heart failure self-care was measured with the Self-care of Heart Failure Index (v.6) dichotomized to adequate (>= 70) or inadequate (<69). Dyadic symptom management type was assessed with the Dyadic Symptom Management Type scale. Interviews regarding self-care were conducted with both dyad members present. Content analytic techniques were used. Data were integrated using an information matrix and triangulated using Creswell and Plano Clark's methods. Results: Of the 27 dyads, HF participants were 56% men, with a mean age of 77 years. Caregivers were 74% women, with a mean age of 66 years, representing spouses (n = 14) and adult children (n = 7). Quantitatively, few dyads scored as adequate (>= 70) in self-care; the qualitative data described the impact of adequacy on the dyads' behavior. Dyads who scored higher, individually or both, on self-care self-efficacy and self-care management were less likely to change from their life course pattern. Either the patient or dyad continued to handle all self-care as they always had, rather than trying new strategies or reaching out for help as the patient's condition deteriorated. Conclusions: Our data suggest links that should be explored between dyadic adequacy and response to patients' symptoms. Future studies should assess dyadic adequacy longitudinally and examine its relationship to event-free survival and health services cost.
Details
- Title: Subtitle
- Heart Failure Self-care Within the Context of Patient and Informal Caregiver Dyadic Engagement A Mixed Methods Study
- Creators
- Harleah G. Buck - University of South FloridaJudith Hupcey - Pennsylvania State UniversityHsiao-Lan Wang - Univ S Florida, Coll Nursing, 12901 Bruce B Downs Blvd,MDC22, Tampa, FL 33612 USAMichael Fradley - University of South FloridaKristine A. Donovan - University of South FloridaAlexa Watach - University of Pennsylvania
- Resource Type
- Journal article
- Publication Details
- The Journal of cardiovascular nursing, Vol.33(4), pp.384-391
- Publisher
- Lippincott Williams & Wilkins
- DOI
- 10.1097/JCN.0000000000000465
- PMID
- 29601368
- ISSN
- 0889-4655
- eISSN
- 1550-5049
- Number of pages
- 8
- Grant note
- R03NR014524 / National Institute of Nursing Research of the National Institutes of Health; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
- Language
- English
- Date published
- 07/2018
- Academic Unit
- Nursing
- Record Identifier
- 9984370641902771
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