Journal article
Hispanic Dementia Family Caregiver's Knowledge, Experience, and Awareness of Self-Management: Foundations for Health Information Technology Interventions
Hispanic health care international, Vol.17(2), pp.49-58
06/2019
DOI: 10.1177/1540415318819220
PMID: 30590959
Abstract
As a first step toward developing a web-based Family-Health Information Management System intervention, we explored Hispanic dementia family caregiver's knowledge, use, and awareness of self-management principles and skills to address health and health care needs for themselves and the person with dementia (PWD).
Twenty caregivers and 11 caregiver counselors attended an English or Spanish language focus group ranging from 4 to 6 participants. We conducted a directed content analysis informed by Lorig and Holman's conceptualization of self-management.
A complement of six skills (i.e., problem solving, decision making, resource utilization, patient-provider partnership, action planning, and self-tailoring) to achieve one of three tasks (i.e., emotional, medical, and role management) can fully represent Hispanic dementia family caregivers' ability to self-manage health and health care needs. While not prominent in our study, caregivers and caregiver counselors pointed out existing and potential uses of personal consumer technology to schedule reminders and search for resources.
A broad conceptualization of self-management may be necessary to understand Hispanic dementia family caregiver's ability and needs to address emotional, medical, and role challenges of caregiving.
These findings and advances in the use of consumer health information technology support the development of self-management caregiver interventions.
Details
- Title: Subtitle
- Hispanic Dementia Family Caregiver's Knowledge, Experience, and Awareness of Self-Management: Foundations for Health Information Technology Interventions
- Creators
- Robert J Lucero - University of FloridaRosario Jaime-Lara - University of PennsylvaniaYamnia I Cortes - University of PittsburghJoan Kearney - Yale UniversityMaribel Granja - Columbia UniversityNiurka Suero-Tejeda - Columbia UniversitySuzanne Bakken - Columbia UniversityJose A Luchsinger - Columbia University
- Resource Type
- Journal article
- Publication Details
- Hispanic health care international, Vol.17(2), pp.49-58
- DOI
- 10.1177/1540415318819220
- PMID
- 30590959
- ISSN
- 1540-4153
- eISSN
- 1938-8993
- Grant note
- R01 NR014430 / NINR NIH HHS
- Language
- English
- Date published
- 06/2019
- Academic Unit
- Nursing
- Record Identifier
- 9984446430702771
Metrics
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