Journal article
Inflammatory Bowel Disease Self-Management: Exploring Adolescent Use of an Online Instagram Support Community
Gastroenterology nursing, Vol.45(4), pp.254-266
07/2022
DOI: 10.1097/SGA.0000000000000657
PMID: 35833744
Abstract
The purpose of this qualitative study was to explore the challenges adolescents with inflammatory bowel disease (IBD) experience with disease self-management as expressed in an online Instagram social support community. Public Instagram posts between January and December 2019 were manually collected from an online IBD support community. To focus on adolescent self-management needs, only posts from Instagram users who (1) indicated they had inflammatory bowel disease, (2) were 13–24 years old, or were in middle school, high school, or college were collected. Using thematic analysis, authors independently coded and identified emerging themes about self-management. Of 2,700 Instagram posts assessed for eligibility, 83 posts met inclusion criteria. Six major themes about inflammatory bowel disease self-management emerged: Desire for Normalcy, Dietary Changes, Education and Career, Healthcare System, Relationships With Others, and Symptoms and Complications. As the first thematic analysis of Instagram posts in an online inflammatory bowel disease community, results provide a crucial perspective of the concerns of adolescents with inflammatory bowel disease. Self-management challenges were wide-ranging and complex, underscoring the importance of IBD self-management in the adolescent population. Nurses should take a holistic approach to assess self-management challenges and tailor care to the specific needs of adolescents living with inflammatory bowel disease.
Details
- Title: Subtitle
- Inflammatory Bowel Disease Self-Management: Exploring Adolescent Use of an Online Instagram Support Community
- Creators
- Caeli Malloy - Defence Research and Development OrganisationSusan M. Rawl - Defence Research and Development OrganisationWendy R. Miller - Defence Research and Development Organisation
- Resource Type
- Journal article
- Publication Details
- Gastroenterology nursing, Vol.45(4), pp.254-266
- DOI
- 10.1097/SGA.0000000000000657
- PMID
- 35833744
- NLM abbreviation
- Gastroenterol Nurs
- ISSN
- 1042-895X
- eISSN
- 1538-9766
- Number of pages
- 13
- Grant note
- National Institutes of Health (http://data.elsevier.com/vocabulary/SciValFunders/100000002) T32NR018407 / National Institutes of Health T32NR018407 / National Institute of Nursing Research (http://data.elsevier.com/vocabulary/SciValFunders/100000056) National Institute of Nursing Research (http://data.elsevier.com/vocabulary/SciValFunders/100000056)
- Language
- English
- Date published
- 07/2022
- Academic Unit
- Nursing
- Record Identifier
- 9985219865002771
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