Journal article
Knowledge, attitudes, and perceived barriers towards genetic testing across three rural Illinois communities
Journal of community genetics, Vol.10(3), pp.417-423
07/2019
DOI: 10.1007/s12687-019-00407-w
PMCID: PMC6591342
PMID: 30673953
Abstract
Genetic testing is becoming more prevalent in detecting risk and guiding cancer treatment in our increasingly personalized medicine model. However, few studies have examined underserved populations’ perceptions of genetic testing, especially those of rural dwelling populations. We asked residents of three rural communities to complete a self-administered survey gauging their knowledge, attitudes, and perceived barriers for genetic testing. 64.8% of participants of the overall study completed the survey. Most participants were aware of genetic testing for cancer screening (69.0%) and would likely share results with their family (88.5% if it indicated low risk, 85.9% for high risk). Some barriers were noted, including genetic testing not offered in a clinic nearby (46.9%), insurance company knowing the results (54.0%), cost (49.1%), and no accessible genetic counselors with whom to discuss results (45.6%). Our rural participants were generally knowledgeable about genetic testing, but this may not be reflective of all rural populations. Opportunities exist to mitigate use barriers, expand the utilization of telehealth services and regulatory agency-approved assays, and increase knowledge regarding privacy and protections offered by statute, such as the Genetic Information Nondiscrimination Act (US) and General Data Protection Regulation (Europe).
Details
- Title: Subtitle
- Knowledge, attitudes, and perceived barriers towards genetic testing across three rural Illinois communities
- Creators
- A. J Fogleman - 201 E Madison St, Springfield, IL 62794-9664 USAW. E Zahnd - 220 Stoneridge Drive Suite 204, Columbia, SC 29210 USAA. E Lipka - W-201B Turner Hall, 1102 S Goodwin Ave, Urbana, IL 61801 USAR. S Malhi - 209F Davenport Hall, 607 Matthews Ave., Urbana, IL 61801 USAS Ganai - 701 N 1st St, Springfield, IL 62781 USAK. R Delfino - 201 E. Madison St., Springfield, IL 62794-9664 USAW. D Jenkins - 201 E Madison St, Springfield, IL 62794-9664 USA
- Resource Type
- Journal article
- Publication Details
- Journal of community genetics, Vol.10(3), pp.417-423
- Publisher
- Springer Berlin Heidelberg
- DOI
- 10.1007/s12687-019-00407-w
- PMID
- 30673953
- PMCID
- PMC6591342
- ISSN
- 1868-310X
- eISSN
- 1868-6001
- Language
- English
- Date published
- 07/2019
- Academic Unit
- Health Management and Policy
- Record Identifier
- 9984214727102771
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