Journal article
Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies
Journal of the National Medical Association, Vol.92(12), pp.563-572
12/2000
PMCID: PMC2568333
PMID: 11202759
Abstract
The under-representation of racial/ethnic minorities among medical research participants has recently resulted in mandates for their inclusion by the National Institutes of Health (NIH). Therefore, there is a need to determine how history, attitudes, cultural beliefs, social issues, and investigator behavior affect minority enrollment in medical research studies. From January 1998 to March 1999, 179 African-American and white residents of the Detroit Primary Metropolitan Statistical Area (PMSA) participated in a mail and telephone survey designed to examine impediments to African-American participation in medical research studies. Chi-square tests were performed to assess differences between the study groups using the Survey Data Analysis Program (SUDAAN). Eighty-one percent of African Americans and 28% of whites had knowledge of the Tuskegee Study (p = <0.001). Knowledge of the Tuskegee Study resulted in less trust of researchers for 51% of African-Americans and 17% of whites (p = 0.02). Forty-six percent of African-Americans and 34% of whites indicated that their knowledge of the study would affect future research participation decisions (p = 0.25). Of these, 49% of African-Americans and 17% of whites would not be willing to participate in future medical research studies (p = 0.05). This study confirms the need for medical researchers to confront the issue of the Tuskegee Study and its continuing impact on African-Americans' trust of medical research studies.
Details
- Title: Subtitle
- Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies
- Creators
- V L Shavers - Department of Epidemiology, School of Hygiene and Public Health, Johns Hopkins University, Baltimore, MD 21205, USAC F LynchL F Burmeister
- Resource Type
- Journal article
- Publication Details
- Journal of the National Medical Association, Vol.92(12), pp.563-572
- Publisher
- United States
- PMID
- 11202759
- PMCID
- PMC2568333
- ISSN
- 0027-9684
- eISSN
- 1943-4693
- Grant note
- 1F31 CA 72125-01A1 / NCI NIH HHS 2 T32 CA09314-19 / NCI NIH HHS R03HS09597-01 / AHRQ HHS
- Language
- English
- Date published
- 12/2000
- Academic Unit
- Epidemiology
- Record Identifier
- 9983995116602771
Metrics
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