Journal article
Lowering The Burden of Hereditary Diseases in a Traditional, Inbred Community: Ethical Aspects of Genetic Research and Its Application
Science in context, Vol.11(3-4), pp.391-395
1998
DOI: 10.1017/S0269889700003094
PMID: 15168669
Abstract
The remarkable progress in modern genetic technology enables the identification of genes causing devastating diseases and thereby the development of tools for prenatal diagnosis and carrier detection. To implement the results of genetic research in traditional societies, where genetic diseases are more prevalent due to inbreeding, necessitates a culturally appropriate approach that also promotes traditional and societal values important to the relevant community. This paper presents our experience with implementing the results of modern genetic research among the traditional community of the Negev Bedouin of Israel. Although the benefit of using those results for the prevention of genetic diseases seems obvious, successful implementation relies on a carefully designed educational program aimed at changing culturally related attitudes and perceptions. Such a program should attend to the needs of the community and be sensitive to its traditional values.
Details
- Title: Subtitle
- Lowering The Burden of Hereditary Diseases in a Traditional, Inbred Community: Ethical Aspects of Genetic Research and Its Application
- Creators
- Rivka Carmi - Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel (R. C, K. E., D. W., I. S-V.); University of Iowa, United States (V. S.)Khalil Elbedour - Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel (R. C, K. E., D. W., I. S-V.); University of Iowa, United States (V. S.)Dahlia Wietzman - Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel (R. C, K. E., D. W., I. S-V.); University of Iowa, United States (V. S.)Val Sheffield - Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel (R. C, K. E., D. W., I. S-V.); University of Iowa, United States (V. S.)Ilana Shoham-Vardi - Faculty of Health Sciences, Ben-Gurion University of the Negev, Beer-Sheva, Israel (R. C, K. E., D. W., I. S-V.); University of Iowa, United States (V. S.)
- Resource Type
- Journal article
- Publication Details
- Science in context, Vol.11(3-4), pp.391-395
- Publisher
- Cambridge University Press; Cambridge, UK
- DOI
- 10.1017/S0269889700003094
- PMID
- 15168669
- ISSN
- 0269-8897
- eISSN
- 1474-0664
- Number of pages
- 5
- Language
- English
- Date published
- 1998
- Academic Unit
- Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Medical Genetics and Genomics; Ophthalmology and Visual Sciences
- Record Identifier
- 9984065395202771
Metrics
24 Record Views