Pain Management Concerns From the Hospice Family Caregivers' Perspective

Nai-Ching Chi; George Demiris; Kenneth C Pike; Karla Washington; Debra Parker Oliver

doi:10.1177/1049909117729477

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Pain Management Concerns From the Hospice Family Caregivers' Perspective

Journal article

Open access

Pain Management Concerns From the Hospice Family Caregivers' Perspective

Nai-Ching Chi, George Demiris, Kenneth C Pike, Karla Washington and Debra Parker Oliver

American journal of hospice & palliative medicine, Vol.35(4), pp.601-611

04/2018

DOI: 10.1177/1049909117729477

PMCID: PMC6322198

PMID: 28875732

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https://www.ncbi.nlm.nih.gov/pmc/articles/6322198View

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Abstract

Pain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives. To identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers. We conducted a theory-driven, deductive content analysis of secondary data obtained from hospice family caregivers' interviews from a randomized clinical trial. We included baseline interviews of 15 hospice caregivers of patients from hospice agencies in the States of Washington. The majority of the participants were white and female caregivers. They were spouse/partner or adult child living with the patient. The study identified 5 out of the 6 major themes in the original framework and confirmed that hospice family caregivers face a variety of challenges: caregiver-centric issues, caregiver's medication skills and knowledge, communication and teamwork, organizational skill, and patient-centric issues. A couple of the subthemes in the original framework were not present in our findings. We also expanded the original framework by adding 1 subtheme and revised 2 definitions in the original framework. The study provided an investigation on hospice family caregivers' difficulties in pain management. The results can inform health-care providers and researchers of family caregivers' challenges and provide insights for future designs of educational tools targeting pain management strategies, so that family caregivers can perform pain management effectively at home.

Caregivers - psychology

Humans

Middle Aged

Pain Management - methods

Male

Home Nursing - methods

Hospice Care - methods

Randomized Controlled Trials as Topic

Adult

Female

Aged

Communication

Palliative Care - methods

Details

Title: Subtitle: Pain Management Concerns From the Hospice Family Caregivers' Perspective
Creators: Nai-Ching Chi - 1 College of Nursing, University of Iowa, Iowa City, IA, USA
George Demiris - 3 Department of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, USA
Kenneth C Pike - 4 Department of Psychosocial and Community Health, School of Nursing, Universality of Washington, Seattle, WA, USA
Karla Washington - 5 Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA
Debra Parker Oliver - 5 Department of Family and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA
Resource Type: Journal article
Publication Details: American journal of hospice & palliative medicine, Vol.35(4), pp.601-611
DOI: 10.1177/1049909117729477
PMID: 28875732
PMCID: PMC6322198
NLM abbreviation: Am J Hosp Palliat Care
ISSN: 1049-9091
eISSN: 1938-2715
Publisher: United States
Grant note: R01 NR012213 / NINR NIH HHS
Language: English
Date published: 04/2018
Academic Unit: Iowa Neuroscience Institute; Nursing
Record Identifier: 9984064288902771

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