Patient Experiences with a Tertiary Care Post-COVID-19 Clinic

Alpana Garg; Maran Subramain; Patrick B Barlow; Lauren Garvin; Karin F Hoth; Kimberly Dukes; Richard M Hoffman; Alejandro P Comellas

doi:10.1177/23743735231151539

Back

Patient Experiences with a Tertiary Care Post-COVID-19 Clinic

Journal article

Open access

Peer reviewed

Patient Experiences with a Tertiary Care Post-COVID-19 Clinic

Alpana Garg, Maran Subramain, Patrick B Barlow, Lauren Garvin, Karin F Hoth, Kimberly Dukes, Richard M Hoffman and Alejandro P Comellas

Journal of patient experience, Vol.10, pp.1-9

01/2023

DOI: 10.1177/23743735231151539

PMCID: PMC9869203

PMID: 36698619

Files and links (1)

url

https://doi.org/10.1177/23743735231151539View

Published (Version of record) Open Access

Abstract

Post-acute sequelae of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) (PASC) is a complex condition with multisystem involvement. We assessed patients’ experience with a PASC clinic established at University of Iowa in June 2020. A survey was electronically mailed in June 2021 asking about (1) symptoms and their impact on functional domains using the Patient-Reported Outcomes Measurement Information System (PROMIS) measures (Global Health and Cognitive Function Abilities) (2) satisfaction with clinic services, referrals, barriers to care, and recommended support resources. Survey completion rate was 35% (97/277). Majority were women (67%), Caucasian (93%), and were not hospitalized (76%) during acute COVID-19. As many as 50% reported wait time between 1 and 3 months, 40% traveled >1 h for an appointment and referred to various subspecialities. Participants reported high symptom burden-fatigue (77%), “brain fog” (73%), exercise intolerance (73%), anxiety (63%), sleep difficulties (56%) and depression (44%). On PROMIS measures, some patients scored significantly low (≥1.5 SD below mean) in physical (22.7%), mental (15.9%), and cognitive (17.6%) domains. Approximately 61% to 93% of participants were satisfied with clinical services. Qualitative analysis added insight to their experience with healthcare. Participants suggested potential strategies for optimizing recovery, including continuity of care, a co-located multispecialty clinic, and receiving timely information from emerging research. Participants appreciated that physicians validated their symptoms and provided continuity of care and access to specialists.

Details

Title: Subtitle: Patient Experiences with a Tertiary Care Post-COVID-19 Clinic
Creators: Alpana Garg - University of Iowa
Maran Subramain - University of Iowa
Patrick B Barlow - University of Iowa
Lauren Garvin - University of Iowa
Karin F Hoth - University of Iowa
Kimberly Dukes - University of Iowa
Richard M Hoffman - University of Iowa
Alejandro P Comellas - University of Iowa
Resource Type: Journal article
Publication Details: Journal of patient experience, Vol.10, pp.1-9
DOI: 10.1177/23743735231151539
PMID: 36698619
PMCID: PMC9869203
NLM abbreviation: J Patient Exp
ISSN: 2374-3735
eISSN: 2374-3743
Grant note: DOI: 10.13039/100006108, name: National Center for Advancing Translational Sciences, award: UL1TR002537
Language: English
Date published: 01/2023
Academic Unit: Pulmonary, Critical Care, and Occupational Medicine; Psychiatry; ICTS; Iowa Neuroscience Institute; Center for Social Science Innovation; Institute for Clinical and Translational Science; Office of Consultation and Research in Medical Education; General Internal Medicine; Community and Behavioral Health; Internal Medicine
Record Identifier: 9984360858002771

Metrics

19 Record Views

8 Times Cited - Web of Science

See more details