Journal article
Patient Resources Available to Bladder Cancer Patients: A Pilot Study of Healthcare Providers
Urology (Ridgewood, N.J.), Vol.79(1), pp.172-177
2012
DOI: 10.1016/j.urology.2011.07.1405
PMID: 21996109
Abstract
To survey thought leaders attending an annual bladder cancer conference about resources available to survivors at, primarily, large academic centers treating a high volume of patients. Bladder cancer is a disease with high treatment burden. Support groups and survivorship programs are effective at managing physical and psychosocial impairments experienced by patients. The Institute of Medicine recommends increased resources for cancer survivorship, but no description of current resources exists for bladder cancer patients.
Preceding the 4th annual Bladder Cancer Think Tank meeting in August 2009, we carried out an Internet-based survey of registrants that queried respondents about institutional resources and support systems devoted to bladder cancer survivors. Data were collected using
SurveyMonkey.com, and descriptive statistics were computed.
A total of 43 eligible respondents included urologists (77%), medical oncologists (16%), and other physicians or health professionals (7%). Physician respondents represented 22 academic centers and 2 private groups. Although 63% of respondent institutions had a National Cancer Institute designation, only 33% had an active bladder cancer support group. Survivorship clinics were available in 29% of institutions, and peer support networks, community resources for education, and patient navigation were available in 58%, 13%, and 25% of respondent institutions, respectively.
Resources for bladder cancer survivors vary widely and are lacking at several academic centers with high-volume bladder cancer populations. Bladder cancer providers are often unaware of available institutional resources for patients. Urologists need to advocate for additional survivor resources and partner with other disciplines to provide appropriate care.
Details
- Title: Subtitle
- Patient Resources Available to Bladder Cancer Patients: A Pilot Study of Healthcare Providers
- Creators
- Cheryl T. Lee - University of Michigan–Ann ArborMinghua Mei - Baylor College of MedicineJan Ashley - Bladder Cancer Advocacy NetworkGene Breslow - Bladder Cancer Advocacy NetworkMichael O'Donnell - University of IowaScott Gilbert - University of Florida Health Science CenterSimon Lemmy - Endo PharmaceuticalsClaire Saxton - Bladder Cancer Advocacy NetworkArthur Sagalowsky - The University of Texas Southwestern Medical CenterShubhada Sansgiry - Michael E. DeBakey VA Medical CenterDavid M. Latini - Baylor College of MedicineBladder Cancer Think Tank and the Bladder Cancer Advocacy Network
- Resource Type
- Journal article
- Publication Details
- Urology (Ridgewood, N.J.), Vol.79(1), pp.172-177
- Publisher
- Elsevier Inc
- DOI
- 10.1016/j.urology.2011.07.1405
- PMID
- 21996109
- ISSN
- 0090-4295
- eISSN
- 1527-9995
- Grant note
- HFP90-020 / VA HSR&D Houston Center of Excellence
- Language
- English
- Date published
- 2012
- Academic Unit
- Urology
- Record Identifier
- 9984320063702771
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