Patients' attitudes and preferences about participation and recruitment strategies in clinical trials

Amit Sood; Kavita Prasad; Laveena Chhatwani; Eri Shinozaki; Stephen S Cha; Laura L Loehrer; Dietlind L Wahner-Roedler

doi:10.4065/84.3.243

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Patients' attitudes and preferences about participation and recruitment strategies in clinical trials

Journal article

Open access

Peer reviewed

Patients' attitudes and preferences about participation and recruitment strategies in clinical trials

Amit Sood, Kavita Prasad, Laveena Chhatwani, Eri Shinozaki, Stephen S Cha, Laura L Loehrer and Dietlind L Wahner-Roedler

Mayo Clinic proceedings, Vol.84(3), pp.243-247

03/2009

DOI: 10.4065/84.3.243

PMCID: PMC2664601

PMID: 19252111

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https://europepmc.org/articles/pmc2664601View

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Abstract

To assess attitudes of patients about participation in clinical trials. This is a self-report survey of 400 patients who underwent general medical evaluations between September and November 2006 at a tertiary care academic medical center in Rochester, MN. We measured knowledge of access to clinical trials, attitudes toward participation, recruitment preferences, and beliefs about research integrity. Of 485 consecutive patients, 400 (82%) completed the survey. Previous participation in clinical trials was reported by 112 patients (28%). Most were unaware of online information about clinical trials (330 [82%]), were satisfied with their current knowledge (233 [58%]), expected their treating physician to inform them about current trials (304 [76%]), and showed equal interest in participating in conventional or complementary intervention trials (174 [44%]). Of the 400 respondents, 321 (80%) found it appropriate to be contacted by mail and 253 (63%) by telephone regarding study participation. Most patients (364 [91%]) wanted to be informed about research findings or else would not participate in future clinical trials (272 [68%]). The most frequently expected compensation was free parking (234 [58%]). Most thought that their safety (373 [93%]) and privacy (376 [94%]) would be guarded. Patients are interested in participating in clinical trials but commonly lack adequate information. If patients received more information (through their treating physicians), enrollment might improve. This single-site study has limited generalizability. Future studies involving a diverse group of patients from a broader geographic distribution will help provide more definitive results.

Adult

Aged

Clinical Trials as Topic

Cross-Sectional Studies

Female

Health Knowledge, Attitudes, Practice

Humans

Male

Massachusetts

Middle Aged

Motivation

Patient Participation

Patient Satisfaction

Patient Selection

Surveys and Questionnaires

Details

Title: Subtitle: Patients' attitudes and preferences about participation and recruitment strategies in clinical trials
Creators: Amit Sood - Mayo Clinic in Florida
Kavita Prasad - Migrant Health Clinic, Rochester, MN
Laveena Chhatwani - Mayo Clinic in Florida
Eri Shinozaki - Mayo Clinic in Florida
Stephen S Cha - Mayo Clinic
Laura L Loehrer - Mayo Clinic in Florida
Dietlind L Wahner-Roedler - Mayo Clinic in Florida
Resource Type: Journal article
Publication Details: Mayo Clinic proceedings, Vol.84(3), pp.243-247
DOI: 10.4065/84.3.243
PMID: 19252111
PMCID: PMC2664601
NLM abbreviation: Mayo Clin Proc
ISSN: 0025-6196
eISSN: 1942-5546
Language: English
Date published: 03/2009
Academic Unit: General Internal Medicine; Internal Medicine
Record Identifier: 9984359572502771

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